Hu Wen-Yu, Chiu Tai-Yuan, Cheng Yih-Ru, Chuang Rong-Bin, Chen Ching-Yu
School of Nursing, College of Medicine and Hospital, National Taiwan University, Taipei, Taiwan.
Support Care Cancer. 2004 May;12(5):285-92. doi: 10.1007/s00520-004-0611-8. Epub 2004 Mar 25.
Patient-related barriers and their solution in the planning of discharge to palliative home care were investigated through a nationwide survey conducted in Taiwan. Of 250 questionnaires sent to palliative care workers at 15 hospices in Taiwan, 229 valid questionnaires (91.6%) were retrieved. Most of the respondents were nursing staff (72.5%) while only 38 were physicians (16.6%). Canonical correlation analysis was used to examine the association between the barriers and solutions, and revealed that the value of the first variate was 0.49 ( P<0.05). The barriers and canonical loadings were: unable to manage emergent medical conditions (0.83), the quality of care in the hospital is better (0.74), and insufficient number of caregivers (0.72). The effective solutions that correlated significantly with the above factors were ranked as: to reassure the patient about the possibility of smooth readmission (0.84), to arrange palliative home care programs (0.68), and to educate family members on taking care of the patient at home (0.64). In conclusion, to solve patient-related barriers in the planning of the discharge of patients with terminal cancer, the results suggest that (1). health professionals involved in the care of patients with terminal cancer should have adequate knowledge of palliative care, particularly communication skills, (2). an effective referral system among general or oncology and palliative care units should be established, (3). inpatient care facilities and home-care programs should be provided, and (4). patients and families should be educated as to what may happen and how to manage these conditions at home and should be assured of the availability of medical help.
通过在台湾进行的一项全国性调查,对临终关怀居家护理出院计划中与患者相关的障碍及其解决方案进行了调查。在向台湾15家临终关怀机构的临终关怀工作人员发放的250份问卷中,回收了229份有效问卷(91.6%)。大多数受访者是护理人员(72.5%),而只有38名是医生(16.6%)。采用典型相关分析来检验障碍与解决方案之间的关联,结果显示第一个变量的值为0.49(P<0.05)。障碍及其典型载荷分别为:无法处理紧急医疗状况(0.83)、医院护理质量更好(0.74)以及护理人员数量不足(0.72)。与上述因素显著相关的有效解决方案排序如下:让患者放心再次入院可能顺利(0.84)、安排临终关怀居家护理项目(0.68)以及教育家庭成员在家照顾患者(0.64)。总之,为了解决晚期癌症患者出院计划中与患者相关的障碍,结果表明:(1)参与晚期癌症患者护理的卫生专业人员应具备足够的临终关怀知识,尤其是沟通技巧;(2)应在综合或肿瘤及临终关怀科室之间建立有效的转诊系统;(3)应提供住院护理设施和居家护理项目;(4)应教育患者及其家属可能发生的情况以及如何在家中处理这些情况,并确保他们能够获得医疗帮助。