Nisell Margret, Ojmyr-Joelsson Maria, Frenckner Björn, Rydelius Per-Anders, Christensson Kyllike
Department of Woman and Child Health, Child and Adolescent Psychiatric Unit, Karolinska Institutet, Stockholm, Sweden.
J Pediatr Nurs. 2003 Dec;18(6):423-32. doi: 10.1016/s0882-5963(03)00029-0.
Increased knowledge about families with a malformed child affects nursing practice. This study illuminates the experiences and psychosocial situation of 3 patients with imperforate anus and their parents. A qualitative method has been used to analyze the data. We found that the parents' experiences of suffering were overwhelming and that the 3 patients had been depressed during periods. The patients were not as open as their parents; we need to devise better tools to explore and understand children's experiences. The children and their parents need special care and an opportunity to express their anxieties.
对患有畸形儿童家庭的了解增加会影响护理实践。本研究阐明了3名肛门闭锁患者及其父母的经历和心理社会状况。采用了定性方法来分析数据。我们发现，父母的痛苦经历极为强烈，而且这3名患者在某些时期曾感到抑郁。患者不像他们的父母那样开放；我们需要设计更好的工具来探究和理解儿童的经历。儿童及其父母需要特殊护理以及表达焦虑的机会。
