John Viju, Chacko Jacob, Mathai John, Karl Sampath, Sen Sudipta
Department of Paediatric Surgery, Christian Medical College, Vellore 632004, Tamil Nadu, India.
Pediatr Surg Int. 2010 Oct;26(10):989-94. doi: 10.1007/s00383-010-2647-9.
To determine the degree of stress in parents of children operated for intermediate anorectal malformations, and their quality of life (QOL) at follow-up.
Forty-two of the 166 children who had undergone a sacroperineal pullthrough operation for an intermediate type of anorectal malformation, between 1996 and 2005, in the department of paediatric surgery at Christian Medical College, Vellore, responded to follow-up. The psychosocial well-being of the parents and the QOL of the children were assessed by an independent observer.
The main factor which aggravated the stress and caused dissatisfaction with the final outcome was fecal soiling. Mothers bore the brunt of the care of these children, with some help from the fathers and grandparents. The QOL was also significantly affected by soiling, and improvement in soiling resulted in a dramatic improvement in the QOL.
Managing fecal soiling aggressively in the child with anorectal malformation, and providing social support to the family, are crucial for achieving a better QOL in these children and their families.
确定接受中度肛门直肠畸形手术患儿的父母的压力程度及其随访时的生活质量（QOL）。
1996年至2005年间在维洛尔基督教医学院儿科手术部接受骶会阴拖出术治疗中度肛门直肠畸形的166名儿童中，有42名接受了随访。由一名独立观察者评估父母的心理社会状况和儿童的生活质量。
加重压力并导致对最终结果不满的主要因素是粪便污染。母亲承担了照顾这些孩子的主要责任，父亲和祖父母提供了一些帮助。生活质量也受到污染的显著影响，污染情况的改善导致生活质量显著提高。
积极处理肛门直肠畸形患儿的粪便污染问题，并为家庭提供社会支持，对于改善这些患儿及其家庭的生活质量至关重要。
