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患有高位和中位肛门闭锁的儿童:回忆并谈论早年接受的治疗。

Children with high and intermediate imperforate anus: remembering and talking about medical treatment carried out early in life.

作者信息

Ojmyr-Joelsson Maria, Christensson Kyllike, Frenckner Björn, Nisell Margret, Lindholm Torun

机构信息

Pediatric Surgery Unit, Department of Woman and Child Health, Karolinska Institutet, Stockholm, Sweden.

出版信息

Pediatr Surg Int. 2008 Sep;24(9):1009-15. doi: 10.1007/s00383-008-2203-z. Epub 2008 Jul 31.

DOI:10.1007/s00383-008-2203-z
PMID:18668253
Abstract

Treatment of children with high and intermediate imperforate anus entails several different surgical procedures during the first 3-12 months of life, which are accompanied by a strict follow-up treatment regimen. It has not been studied whether the children remember this treatment carried out early in life. Research has shown that small children may demonstrate so-called non-verbal memories of salient events occurring in early childhood. The purpose was to examine whether children with imperforate anus showed distressing memories of previous medical treatment and whether parent-child dialog about medical treatment is related to the child's psychosocial functioning later in life. Parents of 25 children (9 boys, 16 girls) with high and intermediate imperforate anus participated in the study. The mean age among the children was 10.5 years (range 8.0-13.6). A comparison group of 30 children (5 boys and 25 girls) with juvenile chronic arthritis also participated in the study. The mean age was 10.6 years (range 7.8-13.6). All parents answered the Child Behavior Checklist (CBCL/4-18) and a study-specific questionnaire. Children in both groups were reported to show distressing memories of early treatment. Children who had been talked to showed good psychosocial function and were in a better mood and less angry than those who had not been talked to. Parent-child discussions about the child's experiences of medical treatment did not seem to be harmful or in any other way detrimental to the child, instead such discussions seemed to facilitate the child's psychosocial functioning.

摘要

治疗高位和中位肛门闭锁的儿童需要在出生后的头3至12个月内进行几种不同的外科手术,同时还需严格遵循后续的治疗方案。目前尚未研究这些儿童是否会记得早期接受的这种治疗。研究表明,幼儿可能会表现出对幼儿期发生的显著事件的所谓非言语记忆。本研究的目的是检查肛门闭锁儿童是否对先前的治疗有痛苦的记忆,以及亲子间关于治疗的对话是否与儿童日后的心理社会功能有关。25名高位和中位肛门闭锁儿童(9名男孩,16名女孩)的家长参与了该研究。这些儿童的平均年龄为10.5岁(范围8.0至13.6岁)。另一组由30名青少年慢性关节炎儿童(5名男孩和25名女孩)组成的对照组也参与了该研究。平均年龄为10.6岁(范围7.8至13.6岁)。所有家长都回答了儿童行为检查表(CBCL/4 - 18)和一份特定研究的问卷。据报告,两组儿童都对早期治疗有痛苦的记忆。与未进行过此类谈话的儿童相比,那些与家长谈过话的儿童表现出良好的心理社会功能,情绪更好,也不那么容易生气。亲子间关于孩子治疗经历的讨论似乎对孩子没有危害或其他不利影响,相反,此类讨论似乎有助于孩子的心理社会功能发展。

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引用本文的文献

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Pediatrics. 2007 Feb;119(2):e374-83. doi: 10.1542/peds.2006-0212.
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The Quality of My Life questionnaire: the minimal clinically important difference for pediatric rheumatology patients.
J Rheumatol. 2007 Mar;34(3):581-7. Epub 2006 Dec 15.
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Talking about parts of a past experience: The impact of discussion style and event structure on memory for discussed and nondiscussed information.谈论过去经历的各个部分:讨论方式和事件结构对已讨论和未讨论信息记忆的影响。
J Exp Child Psychol. 2006 Dec;95(4):278-97. doi: 10.1016/j.jecp.2006.06.001. Epub 2006 Sep 27.
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Factors influencing agreement between child self-report and parent proxy-reports on the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales.影响儿童自我报告与家长代理报告在儿童生活质量量表4.0(PedsQL)通用核心量表上一致性的因素。
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Mother-child reminiscing about everyday experiences: implications for psychological interventions in the preschool years.母婴对日常经历的回忆:对学前儿童心理干预的启示
Clin Psychol Rev. 2006 Sep;26(5):535-54. doi: 10.1016/j.cpr.2006.05.001. Epub 2006 Jul 3.
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