Gulick E E, Bugg A
College of Nursing, Rutgers University, Newark, NJ 07102.
Res Nurs Health. 1992 Jun;15(3):175-85. doi: 10.1002/nur.4770150304.
Multidimensional health patterning of three groups of persons with multiple sclerosis (MS) was examined. Changing patterns over a 5-year period for each group also were examined. Serial self-assessments of the subjects' prevalence of MS-related symptoms (motor, brainstem, sensory, elimination, mental-emotional) and level of ADL functioning (fine and gross motor activities, sensory/communication, socializing/recreation, intimacy) were obtained by mail. The number of subjects grouped by years since diagnosis was: 69 (0-5), 49 (greater than 5-10), and 93 (greater than 10). Study findings indicated significantly higher levels of functioning in areas of fine and gross motor activities and intimacy among the more recently diagnosed group but no difference among the groups for sensory/communication, recreation/socializing, and symptoms. Significant increases in motor and brainstem symptoms and decline in fine and gross motor activities and intimacy occurred over the 5-year period particularly for the 0 to 5 year postdiagnosis group. Knowledge of symptom and ADL patterning is essential for nurses and other health care providers in anticipating the concerns and needed services of persons with MS and their families.
对三组多发性硬化症（MS）患者的多维健康模式进行了检查。还对每组在5年期间的变化模式进行了检查。通过邮件获得了受试者对MS相关症状（运动、脑干、感觉、排泄、心理情绪）的患病率以及日常生活活动（ADL）功能水平（精细和粗大运动活动、感觉/沟通、社交/娱乐、亲密关系）的系列自我评估。按诊断后的年数分组的受试者人数分别为：69人（0至5年）、49人（大于5至10年）和93人（大于10年）。研究结果表明，在精细和粗大运动活动以及亲密关系方面，最近诊断的组功能水平明显更高，但在感觉/沟通、娱乐/社交和症状方面，各组之间没有差异。在5年期间，尤其是诊断后0至5年的组，运动和脑干症状显著增加，精细和粗大运动活动以及亲密关系下降。了解症状和ADL模式对于护士和其他医疗保健提供者预测MS患者及其家庭的担忧和所需服务至关重要。
