Paltamaa Jaana, Sarasoja Taneli, Wikström Juhani, Mälkiä Esko
Department of Physical Medicine and Rehabilitation, Central Hospital of Central Finland, Keskussairaalantie 19, FIN 40620 Jyväskylä, Finland.
J Rehabil Med. 2006 Nov;38(6):339-45. doi: 10.1080/16501970600731537.
To describe multiple sclerosis and its impact on individuals' perceived problems in functioning, particularly in the domains of self-care, mobility and domestic life.
A population-based study in a prevalence cohort of multiple sclerosis subjects in Central Finland region carried out in the year 2000.
A total of 240 subjects with multiple sclerosis.
A postal questionnaire for assessing physical functioning was developed.
Ninety percent of the study population completed the study. Subjects' average age was 48.2 years (range 20-76 years) and time since symptom onset was 15.8 years (range 0-56 years). Of the subjects, 82% were fully independent in self-care activities and 53% in domestic life, 50% were able to walk without any perceived problems and 38% had a permanent need for a walking aid. Fatigue was the most frequent complaint having an impact on subjects' daily life. Ninety-five subjects out of 240 (40%) were engaged in working life.
These data give a clear indication of favourable functioning in mobility, self-care and domestic life. However, the fact remains that multiple sclerosis is a disabling and costly disease. These results provide information for use by local and national authorities in planning and co-ordinating rehabilitation interventions and social services.
描述多发性硬化症及其对个体功能方面所察觉到问题的影响，特别是在自我护理、行动能力和家庭生活领域。
2000年在芬兰中部地区对多发性硬化症患者患病率队列进行的一项基于人群的研究。
总共240名多发性硬化症患者。
编制了一份用于评估身体功能的邮政调查问卷。
90%的研究人群完成了研究。受试者的平均年龄为48.2岁（范围20 - 76岁），症状出现后的时间为15.8年（范围0 - 56年）。在受试者中，82%在自我护理活动中完全独立，53%在家庭生活中完全独立，50%能够行走且无任何察觉到的问题，38%永久需要助行器。疲劳是对受试者日常生活影响最频繁的抱怨。240名受试者中有95名（40%）从事工作。
这些数据清楚地表明在行动能力、自我护理和家庭生活方面功能良好。然而，多发性硬化症仍然是一种致残且成本高昂的疾病这一事实仍然存在。这些结果为地方和国家当局在规划和协调康复干预及社会服务时提供了可用信息。
