Iacono Teresa, Humphreys John, Davis Robert, Chandler Neale
Centre for Developmental Disability Health Victoria, Monash University, Suite 202, 3 Chester Street, Oakleigh, Vic. 3166, Australia.
Res Dev Disabil. 2004 May-Jun;25(3):265-84. doi: 10.1016/j.ridd.2003.09.001.
Priorities in the delivery of health care to Australian country people with developmental disability were explored through focus groups and interviews of key stakeholder groups from four rural/regional towns. Data were analysed for themes, which converged on lack of access to primary health care providers who lacked knowledge about and had poor attitudes towards developmental disability, discriminatory practices, the burden on support people, and communication difficulties between GPs and people with developmental disability. Potential strategies to address the apparent dissatisfaction with primary health care and GP concerns about working with this group were also evident in the data. In particular, open communication between stakeholders as a mechanism for collaborative problem solving and a strategy to avoid burn out for both support people and GPs is recommended. Facilitation of such communication can best occur through undergraduate training and participation of disability workers in activities of organisations that support GPs.
通过焦点小组以及对来自四个农村/地区城镇的关键利益相关者群体的访谈，探讨了为澳大利亚发育障碍农村居民提供医疗保健服务的优先事项。对数据进行了主题分析，这些主题集中在难以获得对发育障碍缺乏了解且态度不佳的初级医疗保健提供者、歧视性做法、对支持人员的负担以及全科医生与发育障碍患者之间的沟通困难。数据中还明显体现出解决对初级医疗保健的明显不满以及全科医生对与该群体合作的担忧的潜在策略。特别是，建议利益相关者之间进行开放沟通，作为协作解决问题的机制以及避免支持人员和全科医生倦怠的策略。通过本科培训以及残疾工作者参与支持全科医生的组织活动，能够最好地促进这种沟通。
