Stålberg Gabriella, Ekerwald Hedvig, Hultman Christina M
Department of Medical Epidemiology and Biostatistics, Stockholm, Sweden.
Schizophr Bull. 2004;30(2):445-58. doi: 10.1093/oxfordjournals.schbul.a007091.
Siblings of schizophrenia patients are from the patient's perspective important support providers, but most studies on family burden have focused on the parental role. This study aims to develop a detailed analysis of the psychological aspects of having a sibling with schizophrenia. We did a qualitative study with audiotaped semistructured interviews of 16 siblings. The reliability of the inductive categorization of data was high. A unifying theme appeared to be an emotional sibling bond characterized by feelings of love, sorrow, anger, envy, guilt, and shame. The major categories linked to coping with the situation were avoidance, isolation, normalization, caregiving, and grieving. A third major theme consisted of a fear of possible schizophrenia heredity. The siblings described concerns about the impact of a family history of psychiatric illness, a fear of becoming mentally ill, and reflections about "bad genes." Our findings support earlier findings of coping patterns but complement them by providing a model that includes awareness of genetic vulnerability as an important part of siblings' subjective burden.
精神分裂症患者的兄弟姐妹从患者的角度来看是重要的支持提供者,但大多数关于家庭负担的研究都集中在父母的角色上。本研究旨在深入分析有一个患精神分裂症的兄弟姐妹所涉及的心理层面。我们对16名兄弟姐妹进行了半结构化访谈并录音,开展了一项定性研究。数据归纳分类的可靠性很高。一个统一的主题似乎是一种情感上的手足情谊,其特点是有爱、悲伤、愤怒、嫉妒、内疚和羞耻等情感。与应对这种情况相关的主要类别包括回避、孤立、正常化、照顾和悲伤。第三个主要主题是对精神分裂症遗传可能性的恐惧。这些兄弟姐妹描述了对精神疾病家族史影响的担忧、对自己患精神疾病的恐惧以及对“不良基因”的思考。我们的研究结果支持了早期关于应对模式的研究结果,但通过提供一个模型对其进行了补充,该模型将对遗传易感性的认知作为兄弟姐妹主观负担的重要组成部分。