Friedrich Rose Marie, Lively Sonja, Rubenstein Linda M
College of Nursing, University of Iowa, 50 Newton Rd., Iowa City, IA 52242, USA.
Psychiatr Serv. 2008 Mar;59(3):261-7. doi: 10.1176/ps.2008.59.3.261.
This study examined the helpfulness of coping strategies and the relative importance of mental health services in coping with schizophrenia from the perspective of siblings.
This article presents selected survey data from a national study of 746 respondents that investigated the impact of schizophrenia on siblings' lives. The authors developed the Friedrich-Lively Instrument to Assess the Impact of Schizophrenia on Siblings (FLIISS), a closed-ended questionnaire that included questions about coping strategies and mental health services.
Respondents identified services for the ill sibling, including symptom control, adequate housing, and long-term planning, as more important than direct services for themselves. The top-ranked coping strategies were education about schizophrenia, a supportive family, and seeing the ill sibling suffer less because symptoms were controlled. Understanding that families were not to blame for schizophrenia was the most helpful coping strategy for nearly three-fourths of siblings. Siblings had little contact with providers in the past; yet the majority of siblings wanted providers to be available to answer questions and clarify their role in future care. At the time of the study, respondents provided social support and helped with crises, but few coordinated the total care.
Siblings identified multiple ways that providers can support and assist them in coping with the impact of schizophrenia. Education and support for siblings without schizophrenia and services for their ill siblings will become increasingly important for the well-being of siblings as they are faced with the responsibility of being the primary caregivers in the future.
本研究从兄弟姐妹的角度，考察应对策略的有效性以及心理健康服务在应对精神分裂症方面的相对重要性。
本文呈现了一项针对746名受访者的全国性研究中的部分调查数据，该研究调查了精神分裂症对兄弟姐妹生活的影响。作者开发了弗里德里希 - 利夫利精神分裂症对兄弟姐妹影响评估工具（FLIISS），这是一份封闭式问卷，包含有关应对策略和心理健康服务的问题。
受访者认为为患病兄弟姐妹提供的服务，包括症状控制、充足住房和长期规划，比为他们自己提供的直接服务更重要。排名靠前的应对策略包括对精神分裂症的教育、支持性的家庭以及因症状得到控制而使患病兄弟姐妹痛苦减轻。对于近四分之三的兄弟姐妹来说，明白精神分裂症并非家庭之过是最有帮助的应对策略。兄弟姐妹过去与服务提供者接触很少；然而，大多数兄弟姐妹希望服务提供者能够随时解答问题并明确他们在未来护理中的角色。在研究进行时，受访者提供了社会支持并帮助应对危机，但很少有人协调全面护理。
兄弟姐妹指出了服务提供者可以支持和协助他们应对精神分裂症影响的多种方式。随着兄弟姐妹未来面临成为主要照顾者的责任，对未患精神分裂症的兄弟姐妹进行教育和支持以及为他们患病的兄弟姐妹提供服务，对兄弟姐妹的幸福将变得越来越重要。
