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前列腺癌男性患者伴侣的信息寻求行为:一项定性试点研究。

The information-seeking behaviours of partners of men with prostate cancer: a qualitative pilot study.

作者信息

Feltwell Annie K, Rees Charlotte E

机构信息

Behavioural Sciences Section, Division of Psychiatry, University of Nottingham, Nottingham, UK.

出版信息

Patient Educ Couns. 2004 Aug;54(2):179-85. doi: 10.1016/S0738-3991(03)00212-X.

Abstract

This pilot study explores in depth the information-seeking behaviours of partners of men with prostate cancer. Six men with prostate cancer and their partners participated in one mini focus group discussion or four couple interviews. Theme analysis by two independent analysts produced three related themes: partners' information-seeking behaviours; partners' information-avoiding behaviours; and the conflict between seeking and avoiding information. The information-seeking behaviours of partners were individualistic, with some partners seeking voluminous information and others avoiding information. Partners sought information to help reduce their feelings of anxiety and uncertainty, to help them participate in the decision-making process, to help them care for their partner and to ensure that they had their information needs met. Partners avoided information to reduce their levels of fear and worry and to maintain a sense of normality. They failed to seek information from healthcare professionals because they felt disempowered and pressurised for time during patient-physician consultations. The information-seeking behaviours of partners changed over time and across situations and their behaviours were sometimes different from those of their partners (the patients), with some partners exhibiting more information-seeking behaviour than patients. The findings within each of these themes and their practice implications are discussed in this paper.

摘要

这项试点研究深入探讨了前列腺癌男性患者伴侣的信息寻求行为。六名前列腺癌男性患者及其伴侣参与了一次小型焦点小组讨论或四次夫妻访谈。两名独立分析师进行的主题分析得出了三个相关主题:伴侣的信息寻求行为;伴侣的信息回避行为;以及寻求和回避信息之间的冲突。伴侣的信息寻求行为是个体化的,一些伴侣寻求大量信息,而另一些则回避信息。伴侣寻求信息是为了帮助减轻焦虑和不确定感,帮助他们参与决策过程,帮助他们照顾伴侣,并确保他们的信息需求得到满足。伴侣回避信息是为了降低恐惧和担忧程度,并维持正常感。他们没有向医疗保健专业人员寻求信息,因为他们在患者与医生的咨询过程中感到无权且时间紧迫。伴侣的信息寻求行为会随着时间和情况而变化,他们的行为有时与伴侣(患者)不同,一些伴侣表现出比患者更多的信息寻求行为。本文讨论了这些主题中的每一个主题的研究结果及其实际意义。

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