Levesque Janelle V, Lambert Sylvie D, Girgis Afaf, Turner Jane, McElduff Patrick, Kayser Karen
Centre for Oncology Education and Research Translation (CONCERT), Ingham Institute for Applied Medical Research, South Western Sydney Clinical School, UNSW Medicine, UNSW Sydney, Australia.
Ingram School of Nursing, Magill University, Montreal, Canada.
Asia Pac J Oncol Nurs. 2015 Jul-Sep;2(3):169-175. doi: 10.4103/2347-5625.160969.
To (a) determine whether the information provided to men with prostate cancer and their partners in the immediate postdiagnostic phase met their needs; and (b) examine patient and partner satisfaction with the information received.
Pre-intervention survey data from a pilot randomized controlled trial of a self-directed coping skills intervention involving 42 patients with prostate cancer, and their partners were collected to examine their psychosocial concerns/needs.
The main concerns for patients and partners were psychosocial in nature such as managing emotions, concern about the future, and losing control. Overall, patients and partners received most information about tests and treatment options. Partners reported receiving significantly less information about support services ( = 0.03) and self-care strategies ( = 0.03) compared to patients. Partners also reported being significantly less satisfied with the information they received ( = 0.007).
Whereas medical information is routinely given, patients and partners may benefit from greater information about psychosocial issues arising from cancer. Despite increased recognition of partner's information needs these still remain unmet.
(a) 确定在诊断后即刻阶段向前列腺癌患者及其伴侣提供的信息是否满足他们的需求；(b) 检查患者及其伴侣对所接收信息的满意度。
收集了一项关于自我导向应对技能干预的试点随机对照试验的干预前调查数据，该试验涉及42名前列腺癌患者及其伴侣，以检查他们的心理社会问题/需求。
患者及其伴侣的主要担忧本质上是心理社会方面的，如情绪管理、对未来的担忧以及失去控制感。总体而言，患者及其伴侣获得的关于检查和治疗选择的信息最多。与患者相比，伴侣报告收到的关于支持服务（P = 0.03）和自我护理策略（P = 0.03）的信息明显更少。伴侣还报告对所接收信息的满意度明显更低（P = 0.007）。
虽然常规提供医疗信息，但患者及其伴侣可能会从更多关于癌症引发的心理社会问题的信息中受益。尽管对伴侣的信息需求的认识有所提高，但这些需求仍未得到满足。
