Sinfield Paul, Baker Richard, Agarwal Shona, Tarrant Carolyn
Department of Health Sciences, University of Leicester, Princess Road West, Leicester, UK.
Patient Educ Couns. 2008 Oct;73(1):91-6. doi: 10.1016/j.pec.2008.05.001. Epub 2008 Jun 18.
To gain an in depth understanding of the experiences of care of men with prostate cancer and their partners.
The study design was a qualitative analysis of semi-structured interviews of men (35) who had been diagnosed and treated for prostate cancer and their partners (10). They were recruited from two hospitals in the East Midlands of England and two charities.
The interviews showed that although there was no widespread dissatisfaction with care, patients reported problems throughout care. The two main problems were that throughout care patients' and partners' information needs were often not identified or met, and patients' preferred role in decision-making about testing and treatment was not explored.
If patients' experiences of prostate cancer care are to be improved, clinicians need to identify, and respond to, the information and decision-making needs of individual patients and their partners.
Clinicians should identify and meet the needs of patients individually, use appropriate language and formats for communicating information, fully prepare patients for tests, explore and meet the needs of patients for involvement in decision-making, and recognise the important role that their partner plays. Systems and pathways of care should be designed to enable patients and partners to obtain information and participate in decision-making throughout all stages of care.
深入了解前列腺癌男性患者及其伴侣的护理体验。
本研究设计为对35名已确诊并接受前列腺癌治疗的男性患者及其10名伴侣进行半结构化访谈的定性分析。他们是从英格兰东米德兰兹郡的两家医院和两个慈善机构招募的。
访谈显示，尽管患者对护理并无普遍不满，但他们在整个护理过程中都遇到了问题。两个主要问题是，在整个护理过程中，患者及其伴侣的信息需求常常未被识别或满足，且未探究患者在检测和治疗决策中倾向的角色。
若要改善前列腺癌患者的护理体验，临床医生需识别并回应个体患者及其伴侣的信息和决策需求。
临床医生应个别识别并满足患者需求，使用恰当的语言和形式传达信息，让患者为检测做好充分准备，探究并满足患者参与决策的需求，认识到其伴侣所起的重要作用。护理系统和流程应设计成能让患者及其伴侣在护理的各个阶段获取信息并参与决策。
