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影响照顾呼吸机辅助儿童的母亲健康促进活动的因素。

Factors influencing health promoting activities of mothers caring for ventilator-assisted children.

作者信息

Kuster Patricia A, Badr Lina K, Chang Betty L, Wuerker Anne K, Benjamin A E

机构信息

College of Nursing, University of Arizona, Tuscon, AZ 85721, USA.

出版信息

J Pediatr Nurs. 2004 Aug;19(4):276-87. doi: 10.1016/j.pedn.2004.05.009.

Abstract

The extensive care a ventilator-assisted child (VAC) requires when cared for in the home can impact the mother's ability to participate in health promotion activities. The purpose of this study was to examine health promotion activities and the relationships among functional status of the child, impact of the illness on the family, coping, social support, and health promotion activities of mothers who care for ventilator-assisted children at home. Thirty-eight primary female caregivers, mostly mothers, participated in the study and completed the Personal Lifestyle Questionnaire (PLQ), measures of child's functional status, impact of the illness on the family, coping, social support, and demographic data. Findings revealed that the mothers scored low on the nutrition, exercise, relaxation, and general health promotion subscales of the PLQ. Functional status of the child and coping were positively correlated with participation in health promotion activities, whereas impact of the child's illness on the family was inversely related to health promotion of the mothers. Regression analysis revealed that functional status of the child and coping were significant predictors of mothers' participation in health promotion activities. The high demands associated with caring for a VAC with poor functioning can be a significant risk factor for not participating in health promotion activities. Nurses need to help mothers with coping and finding resources to help mediate the stress related to caring for their child, thereby helping the mothers to maintain their own health.

摘要

在家中照顾呼吸机辅助通气儿童(VAC)所需的广泛护理,可能会影响母亲参与健康促进活动的能力。本研究的目的是调查健康促进活动,以及在家中照顾呼吸机辅助通气儿童的母亲的儿童功能状态、疾病对家庭的影响、应对方式、社会支持与健康促进活动之间的关系。38名主要女性照顾者(大多为母亲)参与了本研究,并完成了个人生活方式问卷(PLQ)、儿童功能状态测量、疾病对家庭的影响、应对方式、社会支持以及人口统计学数据的收集。研究结果显示,母亲们在PLQ的营养、运动、放松和总体健康促进分量表上得分较低。儿童的功能状态和应对方式与参与健康促进活动呈正相关,而儿童疾病对家庭的影响与母亲的健康促进呈负相关。回归分析显示,儿童的功能状态和应对方式是母亲参与健康促进活动的重要预测因素。照顾功能不佳的VAC所带来的高要求,可能是不参与健康促进活动的一个重要风险因素。护士需要帮助母亲应对并寻找资源,以帮助缓解照顾孩子带来的压力,从而帮助母亲维持自身健康。

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