Rich Ben A
University of California, Davis School of Medicine, Sacramento, California 95817, USA.
Wien Klin Wochenschr. 2004 Jul 15;116(13):420-6. doi: 10.1007/BF03040929.
Advance directive legislation has been in place throughout much of the United States for nearly 3 decades. The right to give an informed consent to or refusal of medical treatment has been recognized by state and federal courts, and that right has been determined to survive the loss of decisional capacity and may be exercised through the execution of instructional or proxy directives. Despite these developments, the percentage of the adult population with a formal advance directive of any type has never exceeded 15%. Moreover, a remarkable number of these directives are ambiguous and/or their existence is unknown to the physicians who are expected to rely upon them. Even unambiguous directives may not be followed at the critical stage in the trajectory of a patient's illness, and the accountability for such disregard by health care institutions or professionals is negligible to nonexistent. Nevertheless, there is real potential for advance directives, as a key element to sound advance care planning, to fulfill their initial promise as instruments of the prospective autonomy of patients. In order for that potential to be realized, primary care physicians must embrace advance care planning as a part of their professional responsibility to patients.
近30年来,预先指示立法在美国大部分地区一直存在。州和联邦法院已经认可了患者对医疗治疗给予知情同意或拒绝的权利,并且该权利被认定在患者丧失决策能力后依然有效,患者可以通过签署指示性或代理性指令来行使这一权利。尽管有这些进展,但拥有任何类型正式预先指示的成年人口比例从未超过15%。此外,相当数量的这些指令含糊不清,和/或预期依赖它们的医生并不知道其存在。即使是明确的指令,在患者病情发展的关键阶段也可能得不到遵循,而医疗保健机构或专业人员对此种忽视行为的问责微乎其微甚至不存在。然而,预先指示作为合理的预先护理计划的关键要素,确实有潜力实现其最初作为患者前瞻性自主权工具的承诺。为了实现这一潜力,初级保健医生必须将预先护理计划视为他们对患者的专业责任的一部分。