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与医疗保健相关的痛苦:一项关于乳腺癌患者经历的研究。

Suffering related to health care: a study of breast cancer patients' experiences.

作者信息

Arman Maria, Rehnsfeldt Arne, Lindholm Lisbet, Hamrin Elisabeth, Eriksson Katie

机构信息

Department of Welfare and Care, Faculty of Health Sciences, University of Linköping, 60174 Norrköping, Sweden.

出版信息

Int J Nurs Pract. 2004 Dec;10(6):248-56. doi: 10.1111/j.1440-172x.2004.00491.x.

Abstract

A previous study indicated that patient narratives include experiences of suffering caused or increased by health-care encounters. The aim of this study was to interpret and understand the meaning of patients' experiences of suffering related to health care from an ethical, existential and ontological standpoint. Sixteen women with breast cancer in Sweden and Finland took part in qualitative interviews analysed with a hermeneutic, interpretive approach. The outcome showed that suffering related to health care is a complex phenomenon and constitutes an ethical challenge to health-care personnel. The women's experiences of suffering related to health care tended to be of similar seriousness as their experiences of suffering in relation to having cancer. In an ethical, existential and ontological sense, suffering related to health care is basically a matter of neglect and uncaring where the patient's existential suffering is not seen and she is not viewed as a whole human being.

摘要

先前的一项研究表明,患者的叙述包括因医疗接触导致或加剧的痛苦经历。本研究的目的是从伦理、存在主义和本体论的角度诠释并理解患者与医疗相关的痛苦经历的意义。瑞典和芬兰的16名乳腺癌女性参与了定性访谈,采用诠释学、解释性方法进行分析。结果表明,与医疗相关的痛苦是一个复杂的现象,对医护人员构成了伦理挑战。这些女性与医疗相关的痛苦经历的严重程度往往与她们患癌症的痛苦经历相似。从伦理、存在主义和本体论的意义上讲,与医疗相关的痛苦基本上是一个忽视和冷漠的问题,患者的存在主义痛苦未被看到,她也未被视为一个完整的人。

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