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“我们陷入了困境”:通过影像叙事了解原住民女性的乳腺癌经历。

'We've fallen into the cracks': Aboriginal women's experiences with breast cancer through photovoice.

机构信息

University of Saskatchewan, Saskatoon, SK, Canada S7N 5A5.

出版信息

Nurs Inq. 2009 Dec;16(4):306-17. doi: 10.1111/j.1440-1800.2008.00432.x.

DOI:10.1111/j.1440-1800.2008.00432.x
PMID:19906281
Abstract

Despite some recognition that Aboriginal women who have experienced breast cancer may have unique health needs, little research has documented the experiences of Aboriginal women from their perspective. Our main objective was to explore and to begin to make visible Aboriginal women's experiences with breast cancer using the qualitative research technique, photovoice. The research was based in Saskatchewan, Canada and participants were Aboriginal women who had completed breast cancer treatment. Although Aboriginal women cannot be viewed as a homogeneous group, participants indicated two areas of priority for health-care: (i) Aboriginal identity and traditional beliefs, although expressed in diverse ways, are an important dimension of breast cancer experiences and have relevance for health-care; and (ii) there is a need for multidimensional support which addresses larger issues of racism, power and socioeconomic inequality. We draw upon a critical and feminist conception of visuality to interrogate and disrupt the dominant visual terrain (both real and metaphorical) where Aboriginal women are either invisible or visible in disempowering ways. Aboriginal women who have experienced breast cancer must be made visible within health-care in a way that recognizes their experiences situated within the structural context of marginalization through colonial oppression.

摘要

尽管人们已经认识到,经历过乳腺癌的原住民女性可能有独特的健康需求,但很少有研究从原住民女性的角度记录她们的经历。我们的主要目的是使用定性研究技术——影像方法,探索和开始展示原住民女性的乳腺癌经历。该研究基于加拿大萨斯喀彻温省,参与者是已经完成乳腺癌治疗的原住民女性。尽管不能将原住民女性视为一个同质群体,但参与者表示,医疗保健有两个优先领域:(i)原住民身份和传统信仰,尽管表达方式各不相同,但它们是乳腺癌经历的一个重要方面,与医疗保健有关;(ii)需要多维度的支持,以解决种族主义、权力和社会经济不平等的更大问题。我们借鉴批判性和女性主义的视觉观念,对占主导地位的视觉领域(真实和隐喻的)进行质疑和打破,在这些领域中,原住民女性要么是隐形的,要么是以削弱力量的方式可见的。必须以一种承认她们的经历处于殖民压迫造成的边缘化结构背景下的方式,在医疗保健中让经历过乳腺癌的原住民女性可见。

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