Kerr Laura M J, Harrison Margaret B, Medves Jennifer, Tranmer Joan E, Fitch Margaret I
Queen's University, School of Nursing, Kingston, Ontario, Canada.
J Pediatr Oncol Nurs. 2007 Sep-Oct;24(5):279-93. doi: 10.1177/1043454207304907.
The objective of this study was to conduct an assessment of supportive care needs from the perspective of parents of children diagnosed with cancer within an urban-rural region in Eastern Ontario, Canada. Guided by a conceptual framework for supportive care, the exploratory, mixed-method study used a standard needs survey and semistructured interviews. Fifteen parents completed (75% response rate) the survey, and 3 parents participated as key informants in the follow-up interview. Parents reported needs in all 6 of the need categories outlined within the Supportive Care Needs Framework. The proportion of parents expressing a need ranged from 23% to 39%. Dealing with the fear of their child's cancer spreading was frequently identified by parents. Emotional and informational needs were the 2 most frequently acknowledged categories of need. With further refinement, the use of the conceptual framework will provide a methodology for planning care based on the individual needs identified by parents of children with cancer.
本研究的目的是从加拿大安大略省东部城乡地区被诊断患有癌症儿童的父母的角度，对支持性护理需求进行评估。在支持性护理概念框架的指导下，这项探索性的混合方法研究使用了标准需求调查和半结构化访谈。15名家长完成了调查（回复率为75%），3名家长作为关键信息提供者参与了后续访谈。家长们报告了支持性护理需求框架中列出的所有6类需求。表达需求的家长比例在23%至39%之间。家长们经常提到应对孩子癌症扩散的恐惧。情感和信息需求是最常被认可的两类需求。通过进一步完善，该概念框架的使用将为根据癌症患儿家长确定的个体需求规划护理提供一种方法。
