Jones Georgina, Jenkinson Crispin, Kennedy Stephen
Nuffield Department of Obstetrics and Gynaecology, University of Oxford, UK.
J Psychosom Obstet Gynaecol. 2004 Jun;25(2):123-33. doi: 10.1080/01674820400002279.
to explore and describe the impact of endometriosis upon quality of life.
Nuffield Department of Obstetrics and Gynaecology, University of Oxford.
qualitative study.
twenty-four women with a laparoscopic diagnosis of endometriosis.
face to face, individual, in-depth interviews.
analysis of the data revealed 15 descriptive categories. Pain, physical functioning, role performance, social functioning, emotional well-being, relationship with the medical profession, treatment, sexual intercourse, energy and vitality, employment and infertility were found to be a particular concern for women with endometriosis. Physical appearance, lack of control and powerlessness, feelings of social isolation and concerns that their daughters might develop endometriosis were new areas found to be negatively affected by the condition.
the impact of endometriosis-associated symptoms upon quality of life is multidimensional and more complex than just negatively affecting psychosocial parameters. Conducting in-depth interviews to explore the subjective experiences of patients with endometriosis enabled the diverse areas of quality of life to be identified. Adopting a qualitative methodology is essential for item generation on disease specific health status questionnaires.
探讨并描述子宫内膜异位症对生活质量的影响。
牛津大学纳菲尔德妇产科系。
定性研究。
24名经腹腔镜诊断为子宫内膜异位症的女性。
面对面、单独进行的深入访谈。
数据分析揭示了15个描述性类别。疼痛、身体功能、角色表现、社交功能、情绪健康、与医疗行业的关系、治疗、性交、精力与活力、就业及不孕被发现是子宫内膜异位症女性特别关注的问题。外貌、缺乏控制感和无力感、社会孤立感以及担心女儿可能患子宫内膜异位症是新发现的受该疾病负面影响的领域。
子宫内膜异位症相关症状对生活质量的影响是多维度的，且比仅仅负面影响心理社会参数更为复杂。通过深入访谈来探究子宫内膜异位症患者的主观体验，能够确定生活质量的不同方面。采用定性方法对于制定特定疾病健康状况问卷的条目至关重要。
