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本文引用的文献

1
Sexual Activity during Menstruation as A Risk Factor for Endometriosis: A Systematic Review and Meta-Analysis.经期性行为作为子宫内膜异位症的一个风险因素:一项系统评价与荟萃分析
Int J Fertil Steril. 2023 Jan 1;17(1):1-6. doi: 10.22074/ijfs.2022.541102.1207.
2
Constellations of pain: a qualitative study of the complexity of women's endometriosis-related pain.疼痛的症候群:一项关于女性子宫内膜异位症相关疼痛复杂性的定性研究
Br J Pain. 2021 Aug;15(3):345-356. doi: 10.1177/2049463720961413. Epub 2020 Oct 7.
3
Impact of endometriosis on reproductive health: an integrative review.内异症对生殖健康的影响:综合述评。
J Obstet Gynaecol. 2021 Nov;41(8):1183-1191. doi: 10.1080/01443615.2020.1862772. Epub 2021 Mar 1.
4
Exploring the impact of endometriosis on women's lives: A qualitative study in Iran.探讨子宫内膜异位症对女性生活的影响:伊朗的一项定性研究。
Nurs Open. 2021 May;8(3):1275-1282. doi: 10.1002/nop2.744. Epub 2020 Dec 22.
5
Endometriosis and risk of ovarian cancer: what do we know?子宫内膜异位症与卵巢癌风险:我们了解多少?
Arch Gynecol Obstet. 2020 Jan;301(1):1-10. doi: 10.1007/s00404-019-05358-8. Epub 2019 Nov 19.
6
Association between Sexual Activity during Menstruation and Endometriosis: A Case-Control Study.经期性行为与子宫内膜异位症之间的关联:一项病例对照研究。
Int J Fertil Steril. 2019 Oct;13(3):230-235. doi: 10.22074/ijfs.2019.5601. Epub 2019 Jul 14.
7
The Endometriosis Impact Questionnaire (EIQ): a tool to measure the long-term impact of endometriosis on different aspects of women's lives.内异症影响问卷(EIQ):一种用于衡量内异症对女性生活不同方面长期影响的工具。
BMC Womens Health. 2019 May 14;19(1):64. doi: 10.1186/s12905-019-0762-x.
8
Impact of Endometriosis-Related Adhesions on Quality of Life among Infertile Women.子宫内膜异位症相关粘连对不孕女性生活质量的影响。
Int J Fertil Steril. 2019 Apr;13(1):72-76. doi: 10.22074/ijfs.2019.5572. Epub 2019 Jan 6.
9
Living with painful endometriosis - A struggle for coherence. A qualitative study.与疼痛性子宫内膜异位症共存——一场对连贯性的挣扎。一项定性研究。
Sex Reprod Healthc. 2018 Oct;17:97-102. doi: 10.1016/j.srhc.2018.06.002. Epub 2018 Jun 18.
10
Endometriosis classification according to pain symptoms: can the ASRM classification be improved?根据疼痛症状对子宫内膜异位症进行分类:ASRM 分类能否得到改善?
Best Pract Res Clin Obstet Gynaecol. 2018 Aug;51:111-118. doi: 10.1016/j.bpobgyn.2018.06.003. Epub 2018 Jun 15.

子宫内膜异位症的乌云:关于子宫内膜异位症女性生活不同方面的质性研究(伊朗)

The Black Cloud of Endometriosis on different aspects of the Life of Women with Endometriosis: a qualitative study in Iran.

作者信息

Mollazadeh Sanaz, Mirghafourvand Mojgan, Najmabadi Khadijeh Mirzaii, Khadivzadeh Talat

机构信息

Department of Midwifery, School of Nursing and Midwifery, Mashhad University of Medical Sciences, Mashhad, Iran.

Social Determinants of Health Research Center, Tabriz University of Medical Sciences, Tabriz, Iran.

出版信息

BMC Psychiatry. 2024 Dec 27;24(1):957. doi: 10.1186/s12888-024-06405-8.

DOI:10.1186/s12888-024-06405-8
PMID:39731059
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11673853/
Abstract

AIM

To explore the perception of the impact of endometriosis on various aspects in affected women with endometriosis.

METHOD

Data was gathered through in-depth and semi-structured individual interviews using open questions to comprehend women's experiences with endometriosis and their health-promoting lifestyle. The Conventional Qualitative Content Analysis approach was utilized, and sampling continued until data saturation. Ultimately, 14 women with endometriosis were interviewed.

RESULTS

The theme was following the dominance of the Black Cloud of Endometriosis on Different Aspects of the Life of Women with Endometriosis; with main categories involving (a) Physical depreciation caused by endometriosis, (b) psychological deterioration caused by endometriosis, (c) social isolation, (d) marital relationship disorder, and sexual dissatisfaction.

CONCLUSIONS

The concepts show that endometriosis impacts negatively on different aspects of women's lives. Considering that endometriosis is a multi-dimensional disease, identifying the different aspects of this disease and paying attention to meeting the perceived needs of the affected women will help to improve the treatment process and bring the affected women to the end of their health. These should be improved by adopting appropriate approaches in health policies.

摘要

目的

探讨子宫内膜异位症患者对该疾病对其各个方面影响的认知。

方法

通过深入的半结构化个人访谈收集数据,使用开放式问题来了解女性患子宫内膜异位症的经历及其促进健康的生活方式。采用传统定性内容分析法,持续抽样直至数据饱和。最终,对14名子宫内膜异位症患者进行了访谈。

结果

主题是“子宫内膜异位症的阴霾对子宫内膜异位症女性生活不同方面的主导影响”;主要类别包括(a)子宫内膜异位症导致的身体机能衰退,(b)子宫内膜异位症导致的心理恶化,(c)社会孤立,(d)婚姻关系紊乱和性方面的不满。

结论

这些概念表明,子宫内膜异位症对女性生活的不同方面产生负面影响。鉴于子宫内膜异位症是一种多维度疾病,识别该疾病的不同方面并关注满足受影响女性的感知需求将有助于改善治疗过程并使受影响女性恢复健康。应通过在卫生政策中采用适当方法来改善这些情况。