Schaefer Karen Moore
Department of Nursing, College of Health Professions, Temple University, 3307 N Broad St, Philadelphia, PA 19140, USA.
Holist Nurs Pract. 2005 Jan-Feb;19(1):17-25. doi: 10.1097/00004650-200501000-00007.
This study aimed to learn what it is like for African American women to live with fibromyalgia. Van Manen's phenomenological method of writing and rewriting guided the inquiry. The sample included 10 women, who were interviewed for 30 to 60 minutes each. Two agreed to second interviews, for a total of 12 interviews for data analysis. Data analysis revealed the following themes: (a) managing the symptoms, (b) becoming a self-advocate, (c) medications camouflage the pain, (d) coming to grips with the illness means making changes, (e) being accused of "taking a free ride" angers them, (f) support comes from self and spiritual connections, and (g) a certain amount of secrecy makes it easier to live with the illness. Recommendations focus on using a holistic approach to help African American women achieve or maintain their integrity.
本研究旨在了解非裔美国女性患纤维肌痛症后的生活状况。范·曼嫩的现象学写作与重写方法指导了此项探究。样本包括10名女性，每人接受了30至60分钟的访谈。其中两人同意进行第二次访谈，共计12次访谈用于数据分析。数据分析揭示了以下主题：(a) 管理症状；(b) 成为自我倡导者；(c) 药物掩盖疼痛；(d) 接受疾病意味着做出改变；(e) 被指责“搭便车”令她们愤怒；(f) 支持来自自身和精神联系；(g) 一定程度的保密使与疾病共处更容易。建议聚焦于采用整体方法帮助非裔美国女性实现或保持她们的完整性。
