Taylor Ann Gill, Adelstein Katharine E, Fischer-White Tamara G, Murugesan Maheswari, Anderson Joel G
University of Virginia, Charlottesville, Virginia, USA.
Glob Qual Nurs Res. 2016 Jul 6;3:2333393616658141. doi: 10.1177/2333393616658141. eCollection 2016 Jan-Dec.
Perceptions of people living with chronic illness change over time, contributing to health-related stress that necessitates coping skills. Paterson's shifting perspectives model provides an explanation of chronically ill people's variations in attention to their symptoms. In this qualitative study, 20 people with fibromyalgia living in a rural setting were interviewed in 2013 with the aim of gaining insight into their experiences and the meaning-making associated with their chronic condition. Analysis of the interview data categorized five recurrent, or common, themes: experiences of loss, feelings of fear and uncertainty, influence of stress, stigmatization of the disease, and coping through courage. Difficulties attendant to losses, distress, and stigma associated with this chronic condition led the participants to report poor health-related quality of life. The study findings can be useful across clinical settings to nurses and other health care providers in understanding those diagnosed with fibromyalgia and their care needs.
慢性病患者的认知会随时间而改变，这会导致与健康相关的压力，而这种压力需要应对技巧。帕特森的转变视角模型解释了慢性病患者对自身症状关注的变化。在这项定性研究中，2013年对20名生活在农村地区的纤维肌痛患者进行了访谈，目的是深入了解他们的经历以及与慢性病相关的意义建构。对访谈数据的分析将五个反复出现的或常见的主题进行了分类：失落经历、恐惧和不确定感、压力的影响、疾病的污名化以及通过勇气应对。与这种慢性病相关的失落、痛苦和污名所带来的困难，导致参与者报告与健康相关的生活质量较差。该研究结果对护士和其他医疗保健提供者在临床环境中理解被诊断患有纤维肌痛的患者及其护理需求可能会有所帮助。
