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照护压力、免疫功能与健康:对医学上脆弱儿童的父母进行研究的意义

Caregiving stress, immune function, and health: implications for research with parents of medically fragile children.

作者信息

Kuster Patricia A, Merkle Carrie J

机构信息

The University of Arizona, College of Nursing and Southern Arizona Veterans Administration Health Care System, Tucson, Arizona 85737, USA.

出版信息

Issues Compr Pediatr Nurs. 2004 Oct-Dec;27(4):257-76. doi: 10.1080/01460860490884165.

Abstract

Caregiving stress has been associated with considerable demands imposed on parents responsible for the physical and emotional care of medically fragile children. With health care advances in medicine and technology, there are a growing number of children with chronic conditions and disabilities (i.e., the medically fragile) surviving longer and being cared for almost exclusively in the home by parents. The physical strains, financial constraints, emotional effects, and social isolation experienced by parents caring for children with such complex medical needs may ultimately impact their physical and emotional health. Stress associated with the caregiving of older adults has been shown to negatively impact on health and immune functioning with the potential for associated morbidity. Studies exploring the relationship of stress with biological markers of immune functioning in parents have not been widely conducted. Therefore, there is a great opportunity in parent-child health for researchers to investigate implications of stress on immune functioning and health outcomes in parents caring for medically fragile children at home. The purpose of this review article will be to provide an overview of the literature related to caregiving stress and immune functioning and to discuss implications for research in this area with parents of medically fragile children.

摘要

照顾负担与对负责照顾身体和情感上脆弱的患病儿童的父母所施加的巨大要求相关。随着医学和技术领域医疗保健的进步,患有慢性病和残疾(即身体脆弱)的儿童数量不断增加,他们存活的时间更长,几乎完全由父母在家中照顾。照顾有如此复杂医疗需求的儿童的父母所经历的身体压力、经济限制、情感影响和社会孤立,最终可能会影响他们的身心健康。与照顾老年人相关的压力已被证明会对健康和免疫功能产生负面影响,并有可能引发相关疾病。探索压力与父母免疫功能生物学标志物之间关系的研究尚未广泛开展。因此,在亲子健康领域,研究人员有很大的机会去调查压力对在家照顾身体脆弱儿童的父母的免疫功能和健康结果的影响。这篇综述文章的目的是概述与照顾负担和免疫功能相关的文献,并讨论该领域对身体脆弱儿童父母的研究意义。

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