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本文引用的文献

1
Pitfalls in health communication: healthcare policy, institution, structure, and process.健康传播中的陷阱:医疗政策、机构、结构与流程。
MedGenMed. 2004 Jan 7;6(1):9.
2
Kidney disease as a risk factor for development of cardiovascular disease: a statement from the American Heart Association Councils on Kidney in Cardiovascular Disease, High Blood Pressure Research, Clinical Cardiology, and Epidemiology and Prevention.肾病作为心血管疾病发生的危险因素:美国心脏协会心血管疾病中的肾脏、高血压研究、临床心脏病学以及流行病学与预防委员会的声明
Hypertension. 2003 Nov;42(5):1050-65. doi: 10.1161/01.HYP.0000102971.85504.7c.
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National Kidney Foundation practice guidelines for chronic kidney disease: evaluation, classification, and stratification.美国国家肾脏基金会慢性肾脏病实践指南:评估、分类与分层
Ann Intern Med. 2003 Jul 15;139(2):137-47. doi: 10.7326/0003-4819-139-2-200307150-00013.
4
Early detection of kidney disease in community settings: the Kidney Early Evaluation Program (KEEP).社区环境中肾脏疾病的早期检测:肾脏早期评估项目(KEEP)。
Am J Kidney Dis. 2003 Jul;42(1):22-35. doi: 10.1016/s0272-6386(03)00405-0.
5
Use of the Internet by women with breast cancer.乳腺癌女性对互联网的使用情况。
J Med Internet Res. 2002 Apr-Nov;4(2):E9. doi: 10.2196/jmir.4.2.e9.
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Functional health literacy and the risk of hospital admission among Medicare managed care enrollees.医疗保险管理式医疗参保者的功能性健康素养与住院风险
Am J Public Health. 2002 Aug;92(8):1278-83. doi: 10.2105/ajph.92.8.1278.
7
Association of health literacy with diabetes outcomes.健康素养与糖尿病结局的关联。
JAMA. 2002;288(4):475-82. doi: 10.1001/jama.288.4.475.
8
The association of health literacy with cervical cancer prevention knowledge and health behaviors in a multiethnic cohort of women.多民族女性队列中健康素养与宫颈癌预防知识及健康行为的关联
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9
An evaluation of the quality and contents of asthma education on the World Wide Web.万维网上哮喘教育的质量与内容评估
Chest. 2002 Apr;121(4):1301-7. doi: 10.1378/chest.121.4.1301.
10
The prevention or delay of type 2 diabetes.2型糖尿病的预防或延缓。
Diabetes Care. 2002 Apr;25(4):742-9. doi: 10.2337/diacare.25.4.742.

一项关于万维网上肾脏疾病及风险因素信息的调查。

A survey of kidney disease and risk-factor information on the World Wide Web.

作者信息

Calderón José Luis, Zadshir Ashraf, Norris Keith

机构信息

Charles R. Drew University of Medicine and Science, Los Angeles, California, USA.

出版信息

MedGenMed. 2004 Nov 11;6(4):3.

PMID:15775830
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC1480557/
Abstract

BACKGROUND

Chronic kidney disease (CKD) is epidemic, and informing those at risk is a national health priority. However, the discrepancy between the readability of health information and the literacy skills of those it targets is a recognized barrier to communicating health information that may promote good health outcomes. Because the World Wide Web has become one of the most important sources of health information, we sought to assess the readability of commonly available CKD information.

METHODS

Twelve highly cited English-language, kidney disease Web sites were identified with 4 popular search engines. Each Web site was reviewed for the availability of 6 domains of information germane to CKD and risk-factor information. We estimated readability scores with the Flesch-Kincaid and Flesch Reading Ease Index methods. The deviation of readability scores for CKD information from readability appropriate to average literacy skills and the limited literacy skills of vulnerable populations (low socioeconomic status, health disparities, and elderly) were calculated.

RESULTS

Eleven Web sites met the inclusion criteria. Six of 11 sites provided information on all 6 domains of CKD and risk-factor information. Mean readability scores for all 6 domains of CKD information exceeded national average literacy skills and far exceeded the fifth-grade-level readability desired for informing vulnerable populations. Information about CKD and diabetes consistently had higher readability scores.

CONCLUSION

Information on the World Wide Web about CKD and its risk factors may not be readable for comprehension by the general public, especially by underserved minority populations with limited literacy skills. Barriers to health communication may be important contributors to the rising CKD epidemic and disparities in CKD health status experienced by minority populations.

摘要

背景

慢性肾脏病(CKD)呈流行态势,让高危人群了解相关信息是一项国家卫生重点工作。然而,健康信息的可读性与目标人群的读写能力之间存在差异,这是传播可能促进良好健康结果的健康信息的一个公认障碍。由于万维网已成为健康信息的最重要来源之一,我们试图评估常见的CKD信息的可读性。

方法

通过4个流行的搜索引擎识别出12个被高度引用的英文肾脏病网站。对每个网站进行审查,看是否具备与CKD相关的6个信息领域以及危险因素信息。我们使用弗莱什 - 金凯德和弗莱什阅读简易度指数方法估计可读性得分。计算CKD信息的可读性得分与适合平均读写能力以及弱势群体(社会经济地位低、健康差距大及老年人)有限读写能力的可读性之间的偏差。

结果

11个网站符合纳入标准。11个网站中有6个提供了关于CKD所有6个领域以及危险因素的信息。CKD信息所有6个领域的平均可读性得分超过了国家平均读写能力,并且远远超过了向弱势群体提供信息所需的五年级阅读水平。关于CKD和糖尿病的信息始终具有较高的可读性得分。

结论

万维网上关于CKD及其危险因素的信息可能普通公众难以理解,尤其是对于读写能力有限的未得到充分服务的少数族裔人群。健康传播的障碍可能是导致CKD流行率上升以及少数族裔人群CKD健康状况差异的重要因素。