Thornicroft Graham, Tansella Michele
Section of Community Psychiatry (PRiSM), Health Service Research Department, Institute of Psychiatry, King's College London, London, UK.
Epidemiol Psichiatr Soc. 2005 Jan-Mar;14(1):1-3. doi: 10.1017/s1121189x00001858.
Service user involvement in the planning and provision of mental health services has been growing over the last two decades, especially in countries and areas where institutional service provision has been changed to a community-orientated model of care. However, the material involvement of service users in mental health research is still in its infancy. The aim of this paper is to attempt to place these developments in a conceptual context, to summarise the ethics-based and evidence-based reasons why it has to be considered as necessary, and to illustrate some of the emerging evidence which shows the advantages to be gained from it. In particular the results of recent studies are briefly reported, showing that outcomes data rated by service users in some cases are more important than those rated by staff. The reduction in patient-rated unmet needs in the social domain was the strongest predictor of an increase in subjective quality of life. The importance of including service user preferences within the content of the research questions is exemplified by the results of a recent study that showed that joint crisis plans can significantly reduce the use of compulsory admission during crises and by a review that demonstrated that the use of an explicit service user perspective produced distinctive insights into the long-term effects of Electro-Convulsive Therapy (ECT).
在过去二十年中,服务使用者参与心理健康服务的规划和提供的情况一直在增加,尤其是在那些机构服务提供模式已转变为以社区为导向的护理模式的国家和地区。然而,服务使用者在心理健康研究中的实质性参与仍处于起步阶段。本文的目的是试图将这些发展置于一个概念背景中,总结基于伦理和证据的理由,说明为何必须将其视为必要,并举例说明一些新出现的证据,这些证据显示了从中可获得的优势。特别是简要报告了近期研究的结果,表明在某些情况下,服务使用者评定的结果数据比工作人员评定的更重要。患者评定的社会领域未满足需求的减少是主观生活质量提高的最强预测因素。最近一项研究的结果例证了在研究问题内容中纳入服务使用者偏好的重要性,该研究表明联合危机计划可显著减少危机期间强制入院的使用,还有一项综述表明,采用明确的服务使用者视角能对电休克疗法(ECT)的长期效果产生独特见解。