Research Fellow, Mental Health Research, Faculty of Health, Sport and Science, University of Glamorgan, Glyntaf, Pontypridd, UK.
J Psychiatr Ment Health Nurs. 2010 Feb;17(1):31-8. doi: 10.1111/j.1365-2850.2009.01473.x.
This paper will inform mental health service users and carers on how a University in Wales established a service user and carer-led research group. * The group's primary aim will be to undertake its own service user and carer-led research projects. * Mental health service users have undergone empowerment and research training at a University in Wales. This is an important initiative because it is the first service user and carer-led research group in Wales. * This paper is co-authored by a mental health service user and includes transcripts of service users' stories written in their words. Abstract Service user and carer involvement in research has been gaining momentum in recent years. However, this involvement to date has primarily been as research respondents or 'subjects' in research studies. A group of mental health service users at a University in Wales underwent empowerment and research training to enable them to become active participants in the research process; this training was a necessary step to equip mental health service users with the skills to become independent researchers and to carry out service user-led research. We included transcripts from mental health service users on their views of the empowerment and research training received. We are not reporting, in this paper, on the findings from a research study rather it aims to inform readers how a service user and carer-led research group has been established in Wales. The group has two purposes: (1) to train service users in research methodologies, and thus for them to gain essential research skills; and (2) to undertake their own service user and carer-led research projects thereby implementing the research skills they have acquired from the training. The latter is a primary aim of the group; a future paper will report on its development.
本文将告知精神健康服务使用者和照顾者威尔士一所大学如何成立一个由服务使用者和照顾者主导的研究小组。该小组的主要目的将是进行自己的服务使用者和照顾者主导的研究项目。威尔士的一所大学对精神健康服务使用者进行了赋权和研究培训。这是一项重要的举措，因为这是威尔士第一个由服务使用者和照顾者主导的研究小组。本文由一名精神健康服务使用者共同撰写，并包含了服务使用者用自己的话撰写的故事的文字记录。
摘要
近年来，服务使用者和照顾者参与研究的情况一直在增加。然而，迄今为止，这种参与主要是作为研究对象或研究研究中的“受试者”。威尔士一所大学的一组精神健康服务使用者接受了赋权和研究培训，使他们能够成为研究过程中的积极参与者；这种培训是使精神健康服务使用者具备成为独立研究人员和开展服务使用者主导的研究的技能的必要步骤。我们包括了精神健康服务使用者对所接受的赋权和研究培训的意见的文字记录。本文不是报告一项研究的发现，而是旨在告知读者威尔士如何成立了一个由服务使用者和照顾者主导的研究小组。该小组有两个目的：(1) 培训服务使用者研究方法，从而使他们获得必要的研究技能；(2) 开展他们自己的服务使用者和照顾者主导的研究项目，从而实施他们从培训中获得的研究技能。后者是该小组的主要目标；未来的一篇论文将报告其发展情况。
