Smith Patricia L, Owen Janice L, Fehlings Darcy, Wright James G
Population Health Sciences, The Hospital for Sick Children, 555 University Avenue, Toronto, Ontario M5G 1X8, Canada.
J Pediatr Orthop. 2005 May-Jun;25(3):273-9. doi: 10.1097/01.bpo.0000151056.62356.c0.
The objective of this study was to develop a questionnaire to evaluate the activities of daily living that are important to children with spina bifida and dislocated hips and their families. Ninety-six items were generated from a review of the literature and interviews with clinicians, parents, and children with spina bifida and dislocated hips. Items were rated independently for "importance" and "severity" by the children and their parents. The 26 most important and severe items were formatted into a self-administered questionnaire, the Spina Bifida Hips Questionnaire (SBHQ). Parents and children completed 2 weeks apart the SBHQ, the Activities Scale for Kids (ASK), and the Pediatric Outcomes Data Collection Questionnaire (PODCQ). The SBHQ showed excellent test-retest reliability (intraclass correlation = 0.97). Construct validity was established by correlations with the ASK (r = 0.79, P < 0.01) and the PODCQ (r = 0.84, P < 0.01). In conclusion, the SBHQ is a valid and reliable questionnaire for the evaluation of treatment outcomes for children with spina bifida and dislocated hips.
本研究的目的是开发一份问卷，以评估对患有脊柱裂和髋关节脱位的儿童及其家庭而言重要的日常生活活动。通过对文献的回顾以及对临床医生、家长和患有脊柱裂和髋关节脱位的儿童进行访谈，生成了96个条目。儿童及其家长对这些条目分别进行“重要性”和“严重程度”的评分。将26个最重要且严重程度最高的条目整理成一份自填式问卷，即脊柱裂髋关节问卷（SBHQ）。家长和儿童相隔2周分别完成了SBHQ、儿童活动量表（ASK）和儿科结局数据收集问卷（PODCQ）。SBHQ显示出极好的重测信度（组内相关系数 = 0.97）。通过与ASK（r = 0.79，P < 0.01）和PODCQ（r = 0.84，P < 0.01）的相关性建立了结构效度。总之，SBHQ是一份用于评估脊柱裂和髋关节脱位儿童治疗结局的有效且可靠的问卷。
