Wai E K, Owen J, Fehlings D, Wright J G
University of Toronto, Ontario, Canada.
J Pediatr Orthop. 2000 Nov-Dec;20(6):765-70. doi: 10.1097/00004694-200011000-00013.
The purpose of this study was to develop a valid and reliable questionnaire to assess physical disability related to the spine in children with spina bifida and scoliosis and their families. Eighty-eight items were generated from a review of the literature and interviews with clinicians, parents, and children with spina bifida and scoliosis. Items were reviewed by 40 children and ranked. After eliminating redundant items, the top 25 items were formatted into a self-administered questionnaire. The questionnaire, completed 2 weeks apart, demonstrated "excellent" test-retest reliability (intraclass correlation coefficient = 0.88). Construct validity was established by high correlation with a validated scale of overall disability: the Activities Scale for Kids (r = 0.86, p < 0.01) and by correlations with global assessment of function. In conclusion, the Spina Bifida Spine Questionnaire is a valid and reliable questionnaire and can be used to assess the outcomes of treatment for children with spina bifida and scoliosis.
本研究的目的是开发一份有效且可靠的问卷，以评估脊柱裂和脊柱侧弯患儿及其家庭中与脊柱相关的身体残疾情况。通过对文献的回顾以及对临床医生、家长和患有脊柱裂和脊柱侧弯的儿童进行访谈，生成了88个条目。40名儿童对这些条目进行了评估并排序。在剔除冗余条目后，将排名前25的条目整理成一份自填式问卷。间隔两周完成的问卷显示出“极佳”的重测信度（组内相关系数 = 0.88）。通过与已验证的整体残疾量表——儿童活动量表（r = 0.86，p < 0.01）的高度相关性以及与功能的整体评估的相关性，建立了结构效度。总之，脊柱裂脊柱问卷是一份有效且可靠的问卷，可用于评估脊柱裂和脊柱侧弯患儿的治疗效果。
