• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利：CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法，用中文像聊天一样搜索，搜遍4000万医学文献。AI智能推荐，让科研检索更轻松。

立即免费搜索

文件翻译

保留排版，准确专业，支持PDF/Word/PPT等文件格式，支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述，25分钟生成高质量综述，智能提取关键信息，辅助科研写作。

立即免费体验

F2F connection: a community health information needs assessment of Texas families who have children with chronic illnesses and/or disabilities and their care providers.

作者信息

Huber Jeffrey T, Dietrich Jill D, Cugini Eve, Burke Shannon

机构信息

School of Library and Information Studies, Texas Woman's University, 1130 John Freeman Boulevard, Houston, Texas 77030, USA.

出版信息

J Med Libr Assoc. 2005 Apr;93(2):278-81.

PMID:15858632
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC1082946/
Abstract
摘要

相似文献

1
F2F connection: a community health information needs assessment of Texas families who have children with chronic illnesses and/or disabilities and their care providers.
J Med Libr Assoc. 2005 Apr;93(2):278-81.
2
Information that informs rather than alienates families with disabled children: developing a model of good practice.为残疾儿童家庭提供信息，而非使其疏离：构建良好实践模式。
Health Soc Care Community. 2002 Mar;10(2):74-81. doi: 10.1046/j.1365-2524.2002.00344.x.
3
Meeting the needs of parents around the time of diagnosis of disability among their children: evaluation of a novel program for information, support, and liaison by key workers.在孩子被诊断为残疾前后满足家长的需求：对一项由关键工作者提供信息、支持和联络的新项目的评估。
Pediatrics. 2004 Oct;114(4):e477-82. doi: 10.1542/peds.2004-0240.
4
Camp for all connection: a community health information outreach project.全民连接营地：一个社区健康信息推广项目。
J Med Libr Assoc. 2005 Jul;93(3):348-52.
5
Community networking for improved services to children with chronic illnesses and their families.建立社区网络，为慢性病患儿及其家庭提供更好的服务。
Child Health Care. 1983 Fall;12(2):100-2. doi: 10.1207/s15326888chc1202_11.
6
An exploration of best practice in multi-agency working and the experiences of families of children with complex health needs. What works well and what needs to be done to improve practice for the future?多机构合作的最佳实践探索以及有复杂健康需求儿童家庭的经历。哪些方面运作良好，未来需要做些什么来改进实践？
J Clin Nurs. 2007 Mar;16(3):527-39. doi: 10.1111/j.1365-2702.2006.01554.x.
7
Understanding the parents of children with special needs: collaboration between health, social and education networks.了解特殊需求儿童的家长：健康、社会和教育网络之间的合作。
Child Care Health Dev. 2014 Nov;40(6):825-32. doi: 10.1111/cch.12105. Epub 2013 Sep 13.
8
Benchmarking information needs and use in the Tennessee public health community.田纳西州公共卫生领域的基准信息需求与应用
J Med Libr Assoc. 2003 Jul;91(3):322-36.
9
Working with immigrant families raising a child with a disability: challenges and recommendations for healthcare and community service providers.与残疾儿童的移民家庭合作：医疗保健和社区服务提供者面临的挑战和建议。
Disabil Rehabil. 2012;34(23):2007-17. doi: 10.3109/09638288.2012.667192. Epub 2012 Mar 29.
10
A process for developing community consensus regarding the diagnosis and management of attention-deficit/hyperactivity disorder.一个就注意力缺陷/多动障碍的诊断和管理达成社区共识的过程。
Pediatrics. 2005 Jan;115(1):e97-104. doi: 10.1542/peds.2004-0953.

引用本文的文献

1
Assessment of Disease-related Knowledge Among Children With Inflammatory Bowel Disease and their Family Using IBD-KID2: Evaluating Tool Generalizability.使用IBD-KID2评估炎症性肠病患儿及其家庭中与疾病相关的知识：评估工具的通用性
JPGN Rep. 2021 Jul 12;2(3):e093. doi: 10.1097/PG9.0000000000000093. eCollection 2021 Aug.
2
Disabled and immigrant, a double minority challenge: a qualitative study about the experiences of immigrant parents of children with disabilities navigating health and rehabilitation services in Norway.残疾和移民，双重少数群体的挑战：一项关于挪威残疾儿童移民父母在利用健康和康复服务方面的经历的定性研究。
BMC Health Serv Res. 2020 Feb 22;20(1):134. doi: 10.1186/s12913-020-5004-2.
3
Health information needs of families at childhood cancer: A qualitative study.儿童癌症家庭的健康信息需求：一项定性研究。
J Educ Health Promot. 2019 Dec 31;8:246. doi: 10.4103/jehp.jehp_300_19. eCollection 2019.

本文引用的文献

1
Global childhood chronic illness.
Nurs Adm Q. 2004 Jan-Mar;28(1):60-6. doi: 10.1097/00006216-200401000-00013.
2
Behavioral aspects of chronic illness in children and adolescents.儿童和青少年慢性病的行为方面
Pediatr Clin North Am. 2003 Aug;50(4):859-78. doi: 10.1016/s0031-3955(03)00072-5.
3
The sibling experience of living with childhood chronic illness and disability.与童年慢性病和残疾共处的兄弟姐妹经历。
Annu Rev Nurs Res. 2003;21:279-302.
4
Parenting the child with a chronic condition: an emotional experience.养育患有慢性病的孩子：一种情感体验。
Pediatr Nurs. 1994 Nov-Dec;20(6):611-4.