Van Riper Marcia
School of Nursing, Carolina Center for Genome Sciences, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Annu Rev Nurs Res. 2003;21:279-302.
The main purpose of this integrative review is to summarize existing nursing research on the sibling experience of living in a family that includes a child with a chronic illness or disability, specifically highlighting nurse researchers who have conducted more than two studies concerning the sibling experience. A secondary purpose is to determine to what extent nurse researchers interested in the sibling experience have used or been informed by a developmental science perspective. A final purpose is to discuss future research needed to further develop the existing knowledge base concerning the sibling experience of living with childhood chronic illness and disability. Forty of 86 published research articles were authored or co-authored by nurses. There were four nurse researchers with programs of research. Most studies used a categorical approach and were descriptive, cross-sectional designs; there were few longitudinal studies. Multiple factors were identified that affect how siblings respond to childhood chronic illness and disability. Future research needs to focus on siblings and families from diverse cultural and socioeconomic backgrounds, and outcomes need to be assessed at multiple levels. Furthermore, intervention studies building on the descriptive research are needed.
本整合性综述的主要目的是总结现有的关于与患有慢性疾病或残疾儿童共同生活的家庭中兄弟姐妹经历的护理研究，特别强调那些开展了两项以上关于兄弟姐妹经历研究的护理研究者。次要目的是确定对兄弟姐妹经历感兴趣的护理研究者在多大程度上采用了发展科学视角或受其影响。最终目的是讨论未来进一步发展有关与儿童慢性疾病和残疾共同生活的兄弟姐妹经历的现有知识库所需的研究。86篇已发表的研究文章中有40篇由护士撰写或共同撰写。有4位护理研究者拥有研究项目。大多数研究采用分类方法，属于描述性横断面设计；纵向研究很少。确定了多个影响兄弟姐妹对儿童慢性疾病和残疾反应方式的因素。未来的研究需要关注来自不同文化和社会经济背景的兄弟姐妹及其家庭，并且需要在多个层面评估结果。此外，需要在描述性研究基础上开展干预研究。
