Fey Theres, Kasprzak Julia, Ernst Julia, Weiher Franziska, Schmid Marina, Erickson Nicole, Kühnel Brigitte, Prompinit Wuthichai, Tanzer-Küntzer Sylvia, Algül Hana, Heinemann Volker, Nasseh Daniel
Comprehensive Cancer Center (CCC Munich LMU), LMU Hospital, München, Germany.
Bavarian Cancer Research Center (BZKF), LMU Hospital, München, Germany.
BMC Health Serv Res. 2025 Sep 8;25(1):1192. doi: 10.1186/s12913-025-13342-z.
The Comprehensive Cancer Center Munich has established a central contact point for cancer patients and their caregivers, which is associated with a multidisciplinary supportive care center. The platform facilitates multifaceted enquiries about access to supportive care, second opinions and specialist care. The aim of this study was to investigate the utilization of the contact platform during a period of 31 months.
The analysis was sourced from data regarding contact information gathered between January 1, 2022, and July 31, 2024. The dataset was completed by Privacy Preserving Record Linkage, using the tumor documentation data.
Within 31 months, a total of 1226 enquiries were documented, originating from 1058 distinct individuals. The three most common requests were for second opinions (39%), supportive care consultations (37%) and treatment options (16%). 51.5% of the individuals of the cohort were younger than 60 years old. Age groups ≥ 70 years and above were underrepresented compared to the general population of cancer patients in Germany. Women were overrepresented (65.1%). Supportive counseling was mostly requested by women (75.5%). 72.5% of the individuals that contacted the service were patients and 27.5% relatives or friends. While enquiries about second opinions and supportive care mostly came directly from the patients, the majority (55%) enquiries about treatment options were made by associated persons.
This dataset provided valuable insights as to how the central contact platform service is utilized. These insights will serve to properly address patients' information needs thereby improving access for underrepresented groups.
慕尼黑综合癌症中心为癌症患者及其护理人员设立了一个中央联络点，该联络点与一个多学科支持性护理中心相关联。该平台便于就获得支持性护理、二次诊断意见和专科护理进行多方面咨询。本研究的目的是调查该联络平台在31个月期间的使用情况。
分析数据来源于2022年1月1日至2024年7月31日期间收集的联系信息。数据集通过隐私保护记录链接，利用肿瘤记录数据得以完善。
在31个月内，共记录了1226次咨询，来自1058个不同的个体。最常见的三个请求是二次诊断意见（39%）、支持性护理咨询（37%）和治疗方案（16%）。该队列中51.5%的个体年龄小于60岁。与德国癌症患者的总体人群相比，70岁及以上年龄组的代表性不足。女性占比过高（65.1%）。支持性咨询大多由女性提出（75.5%）。联系该服务的个体中，72.5%是患者，27.5%是亲属或朋友。虽然关于二次诊断意见和支持性护理的咨询大多直接来自患者，但关于治疗方案的咨询大多数（55%）是由相关人员提出的。
该数据集为中央联络平台服务的使用方式提供了有价值的见解。这些见解将有助于妥善满足患者的信息需求，从而改善代表性不足群体的就医机会。
