Rodger S, Mandich A
Division of Occupational Therapy, Department of Occupational Therapy, School of Health and Rehabilitation Services, The University of Queensland, Brisbane, Qld, Australia.
Child Care Health Dev. 2005 Jul;31(4):449-57. doi: 10.1111/j.1365-2214.2005.00524.x.
Accessing services for children with developmental co-ordination disorder (DCD) is frequently difficult for parents who have to navigate both health and education systems to find a diagnosis and appropriate interventions.
A qualitative study design incorporating a phenomenological perspective was utilized to understand the nature of the experiences of these parents in attempting to access support for their children with DCD. Twelve parents, whose children attended the Kids Skills Clinic at the University of Western Ontario and were identified as having DCD, were interviewed by the second author. Interviews were transcribed verbatim and analysed using constant comparative method. Member checking, peer checking and code-recoding were carried out to enhance rigour in data analysis.
A number of themes emerged focusing on the common problems experienced leading to occupational therapy referral. Parents' journeys to seek and access services for their children with DCD were characterized by a sense of maternal knowing, experience of frustration, trivialization of the problem, a sense of 'going it alone', and 'getting the run around'.
Implications for health and educational professionals working with children, in terms of recognition of DCD and referral for services, are described.
对于患有发育性协调障碍（DCD）儿童的家长而言，要获得相关服务往往困难重重，因为他们必须在医疗和教育系统中周旋，才能为孩子确诊并找到合适的干预措施。
采用结合现象学视角的定性研究设计，以了解这些家长在试图为患有DCD的孩子寻求支持时的经历本质。第二作者对12名孩子在西安大略大学儿童技能诊所就诊且被确诊为患有DCD的家长进行了访谈。访谈内容逐字转录，并采用持续比较法进行分析。为提高数据分析的严谨性，进行了成员核对、同行核对和编码重新编码。
出现了一些主题，聚焦于导致职业治疗转诊的常见问题。家长为患有DCD的孩子寻求并获得服务的过程具有以下特点：母亲的认知感、挫败感、问题被轻视、“独自应对”的感觉以及“四处碰壁”。
描述了对从事儿童工作的健康和教育专业人员在识别DCD和转介服务方面的启示。
