Kuhlthau Karen, Hill Kristen Smith, Yucel Recai, Perrin James M
Center for Child and Adolescent Health Policy, Massachusetts General Hospital, Boston, MA, USA.
Matern Child Health J. 2005 Jun;9(2):207-18. doi: 10.1007/s10995-005-4870-x.
We describe family finance-related burden experienced by families with children with special health care needs (CSHCN). The paper further seeks to describe correlates of family financial burden.
We examined correlates of family finance-related burden using multivariate methods and the National Survey of CSHCN, a nationally representative cross-sectional survey of CSHCN. We also examined state-level correlations.
Fully 40% of families with CSHCN, or 3,746,000 families nation-wide, experience financial burden related to their child's condition. Experiencing a finance-related problem is negatively associated with Maternal and Child Health Bureau (MCHB) indicators and positively associated with poor-child health status. States that better meet MCHB indicators generally have lower levels of family finance-related problems.
Families with CSHCN have high levels of finance-related family problems. Development of appropriate systems of care appears to offer a mechanism for alleviating the financial burdens of these families.
我们描述了有特殊医疗需求儿童（CSHCN）的家庭所经历的与家庭财务相关的负担。本文还试图描述家庭财务负担的相关因素。
我们使用多变量方法以及全国CSHCN调查（一项对CSHCN具有全国代表性的横断面调查）来研究与家庭财务相关负担的相关因素。我们还研究了州层面的相关性。
全国范围内，整整40%的CSHCN家庭，即374.6万个家庭，经历了与其孩子病情相关的财务负担。经历与财务相关的问题与母婴健康局（MCHB）指标呈负相关，与儿童健康状况差呈正相关。更好地满足MCHB指标的州，家庭财务相关问题的水平通常较低。
CSHCN家庭存在高水平的与财务相关的家庭问题。发展适当的护理体系似乎为减轻这些家庭的财务负担提供了一种机制。
