Thyen U, Terres N M, Yazdgerdi S R, Perrin J M
Medizinische Universität zu Lübeck, Klinik für Pädiatrie, Germany.
J Dev Behav Pediatr. 1998 Aug;19(4):273-82. doi: 10.1097/00004703-199808000-00006.
This study examines the health outcomes of mothers of children assisted by technology and their associations with condition severity and family and social support. The 6-month postdischarge status of 65 mothers of children assisted by technology was compared with that of 54 mothers of children (matched for age and sex) hospitalized for acute illnesses. We measured maternal health, emotional well-being (Center for Epidemiologic Studies Depression Scale), severity of the child's condition, family functioning, social support, and sociodemographic data. Mothers in the study group reported impaired health related to pain, vitality, social functioning, and mental health and substantially more depressive symptoms than mothers in the control group (p < .001), with almost half having scores suggesting clinical depression. Family supportiveness and opportunities for recreational and cultural activities were significantly lower in families with children assisted by technology. After controlling for sociodemographic variables, high condition severity (p < .01), lack of family support (p = .05), low social support appraisal (p < .01), and high levels of receipt of social support (p < .01) were associated with more depressive symptoms of mothers in the study group. Six months after diagnosis or major hospitalization, the severity of the condition was highly associated with maternal emotional well-being, with family support and social support appraisal having moderate independent positive effects. The receipt of social support indicated need rather than support and was negatively associated with well-being. Discharge planning and support systems need to focus on both the child and the prevention of secondary social and psychological morbidity of caretakers.
本研究考察了借助技术手段得到帮助的儿童的母亲的健康状况，以及这些状况与病情严重程度、家庭和社会支持之间的关联。将65名借助技术手段得到帮助的儿童的母亲在出院6个月后的状况，与54名因急性疾病住院的儿童（年龄和性别匹配）的母亲的状况进行了比较。我们测量了母亲的健康状况、情绪幸福感（流行病学研究中心抑郁量表）、孩子病情的严重程度、家庭功能、社会支持以及社会人口统计学数据。研究组的母亲报告称，她们在疼痛、活力、社会功能和心理健康方面的健康状况受损，且抑郁症状比对照组的母亲多得多（p <.001），几乎一半人的得分表明有临床抑郁症。在有借助技术手段得到帮助的孩子的家庭中，家庭支持度以及娱乐和文化活动的机会显著较低。在控制了社会人口统计学变量后，病情严重程度高（p <.01）、缺乏家庭支持（p =.05）、社会支持评价低（p <.01）以及获得社会支持的程度高（p <.01）与研究组母亲更多的抑郁症状相关。在诊断或重大住院6个月后，病情严重程度与母亲的情绪幸福感高度相关，家庭支持和社会支持评价具有中等程度的独立积极影响。获得社会支持表明的是需求而非支持，且与幸福感呈负相关。出院计划和支持系统需要同时关注儿童以及照顾者继发性社会和心理疾病的预防。
