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[过渡诊所——在成人风湿病学中,它并不总是一个简单的衔接环节]

[Transition clinic--it is not always a simple segue in rheumatology for adults].

作者信息

Minden K, Niewerth M, Zink A, Ganser G

机构信息

HELIOS-Kliniken, Klinikum Berlin-Buch, II. Klinik für Kinderheilkunde und Jugendmedizin und Deutsches Rheumaforschungszentrum Berlin, Forschungsbereich Epidemiologie, Schumannstr. 21/22, 10117 Berlin, Germany.

出版信息

Z Rheumatol. 2005 Jun;64(5):327-33. doi: 10.1007/s00393-005-0746-0.

Abstract

Chronic inflammatory rheumatic diseases with onset in childhood often persist into adulthood and result in a considerable number of patients in impairments of body functions and structures, activities at the individual level and participation in society. Continuation of health care beyond adolescence is, therefore, necessary. Its provision should be of high quality, coordinated, uninterrupted, patient-centred and developmentally appropriate to ensure smooth transitions between children's and adult services and positive outcomes of transition for the young people themselves. Existing research is very persuasive on the need to improve transitions for young people with rheumatic diseases. To achieve effective transition, not only disease specific, but also aspects of growth and development have to be taken into account. Paediatric and adult rheumatologists should establish close cooperation and implement specific transition programs to meet the special health care needs of these patients.

摘要

儿童期起病的慢性炎性风湿性疾病往往会持续至成年期,并导致相当数量的患者出现身体功能和结构受损、个体层面的活动受限以及社会参与障碍。因此,青春期后的医疗保健延续是必要的。其提供应具备高质量、协调性、不间断性、以患者为中心且符合发育阶段特点,以确保儿童和成人服务之间的顺利过渡以及年轻人自身过渡的积极结果。现有研究对于改善风湿性疾病青少年的过渡需求极具说服力。为实现有效的过渡,不仅要考虑疾病特异性,还必须兼顾生长发育方面。儿科和成人风湿病学家应建立密切合作并实施特定的过渡计划,以满足这些患者的特殊医疗保健需求。

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