Jansma Feyuna F I, Schure Lidwien M, de Jong Betty Meyboom
Department of General Practice, University of Groningen, The Netherlands.
Patient Educ Couns. 2005 Aug;58(2):182-6. doi: 10.1016/j.pec.2004.08.008.
Health policy is shifting from professional to informal care. Studies have shown that informal caregivers provide an average of 55% of the needed care. The aim of this study was to get insight in the needs of the caregivers of patients with palliative cancer and how to address those needs with a support program. A questionnaire developed on the basis of 26 interviews was sent to 65 caregivers. The respondents indicate that they do need support, that communication is considered the most important factor followed by practical information about nursing skills, the caregivers' own health and finally social network. The respondents also expressed a need for support after the patient died during bereavement. Most respondents stated they wanted to participate in a support program at least partly together with the patient, at the patient's home and guided by a supporter who has experience with loss and is a professional.
卫生政策正从专业护理转向非正规护理。研究表明,非正规护理人员平均提供所需护理的55%。本研究的目的是深入了解姑息性癌症患者护理人员的需求,以及如何通过一个支持项目来满足这些需求。在26次访谈的基础上编制的一份问卷被发送给了65名护理人员。受访者表示他们确实需要支持,沟通被认为是最重要的因素,其次是关于护理技能、护理人员自身健康以及最终社交网络的实用信息。受访者还表示在患者去世后的哀伤期需要支持。大多数受访者表示,他们希望至少部分地与患者一起,在患者家中,由有丧亲经历且是专业人士的支持者指导下参与一个支持项目。