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慢性病自我管理准备的伦理学

The ethics of self-management preparation for chronic illness.

作者信息

Redman Barbara K

机构信息

College of Nursing, Wayne State University, 5557 Cass Avenue, 112 Cohn Building, Detroit, MI 48202, USA.

出版信息

Nurs Ethics. 2005 Jul;12(4):360-9. doi: 10.1191/0969733005ne801oa.

Abstract

While nearly all patients with a chronic disease must self-manage their condition to some extent, preparation for these responsibilities is infrequently assured in the USA. The result can be significant harm and the undermining of a patient's ability to take advantage of life opportunities and be productive. Agreeing to care for a patient involves a moral responsibility to see that she or he receives the essential elements of care, including the ability to manage the disease on a daily basis. The research base for the efficacy of self-management and for how patients can be prepared to assume it is sufficiently strong that health care professionals must advocate for its inclusion in the routine evidence-based care of individuals with chronic disease. Because patient education is central to nursing's philosophy and practice, the profession should play a major role in removing structural barriers to self-management preparation and assuring its provision to a high standard of quality.

摘要

虽然几乎所有慢性病患者都必须在一定程度上自我管理病情,但在美国,人们很少能确保为他们承担这些责任做好准备。结果可能是严重伤害,以及削弱患者利用生活机会和提高生产力的能力。同意护理患者意味着要承担道德责任,确保患者获得基本的护理要素,包括日常管理疾病的能力。自我管理的有效性以及如何让患者做好承担自我管理责任的准备,其研究基础已经足够坚实,以至于医疗保健专业人员必须倡导将其纳入慢性病患者的常规循证护理中。由于患者教育是护理理念和实践的核心,该专业应在消除自我管理准备的结构性障碍并确保以高标准提供自我管理方面发挥主要作用。

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