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佩戴式技术在膝骨关节炎患者参与身体活动咨询干预中的体验:使用关系伦理视角的定性研究。

Experiences of Wearable Technology by Persons with Knee Osteoarthritis Participating in a Physical Activity Counseling Intervention: Qualitative Study Using a Relational Ethics Lens.

机构信息

Faculty of Medicine, The University of British Columbia, Vancouver, BC, Canada.

Arthritis Research Canada, Vancouver, BC, Canada.

出版信息

JMIR Mhealth Uhealth. 2021 Nov 12;9(11):e30332. doi: 10.2196/30332.

Abstract

BACKGROUND

Current evidence indicates physical activity wearables could support persons with knee osteoarthritis (OA) to be more physically active. However, recent evidence also identifies some persons with arthritis experience guilt or worry while using a wearable if they are not as active as they feel they should be. Questions remain around how persons with knee OA experience benefits or downsides using a wearable in their everyday lives. Better understanding is needed if wearables are to be incorporated in arthritis self-management in ethically aware ways.

OBJECTIVE

Using an ethics lens, we aimed to describe a range of experiences from persons with knee OA who used a wearable during a physical activity counseling intervention study.

METHODS

This is a secondary analysis of qualitative interviews nested within a randomized controlled trial. Guided by phenomenography, we explored the experiences of persons with knee OA following participation in a physical activity counseling intervention that involved using a Fitbit Flex and biweekly phone calls with a study physiotherapist (PT) in an 8-week period. Benefits or downsides experienced in participants' relationships with themselves or the study PT when using the wearable were identified using a relational ethics lens.

RESULTS

Interviews with 21 participants (12 females and 9 males) aged 40 to 82 years were analyzed. Education levels ranged from high school graduates (4/21, 19%) to bachelor's degrees or above (11/21, 52%). We identified 3 categories of description: (1) participants experienced their wearable as a motivating or nagging influence to be more active, depending on how freely they were able to make autonomous choices about physical activity in their everyday lives; (2) some participants felt a sense of accomplishment from seeing progress in their wearable data, which fueled their motivation; (3) for some participants, sharing wearable data helped to build mutual trust in their relationship with the study PT. However, they also expressed there was potential for sharing wearable data to undermine this trust, particularly if this data was inaccurate.

CONCLUSIONS

Findings provide an early glimpse into positive and negative emotional impacts of using a wearable that can be experienced by participants with knee OA when participating in a randomized controlled trial to support physical activity. To our knowledge, this is the first qualitative study that uses a relational ethics lens to explore how persons with arthritis experienced changes in their relationship with a health professional when using a wearable during research participation.

摘要

背景

目前的证据表明,运动可穿戴设备可以帮助膝骨关节炎(OA)患者增加身体活动。然而,最近的证据也表明,一些关节炎患者在使用可穿戴设备时,如果感觉自己没有达到应有的活动水平,会感到内疚或担忧。如果要以合乎道德的方式将可穿戴设备纳入关节炎自我管理,那么就需要更好地了解患者在日常生活中使用可穿戴设备的体验。

目的

本文从伦理的角度出发,旨在描述在一项身体活动咨询干预研究中使用可穿戴设备的膝骨关节炎患者的各种体验。

方法

这是一项嵌套在随机对照试验中的定性访谈的二次分析。在现象学的指导下,我们探讨了膝骨关节炎患者在参加一项身体活动咨询干预(涉及使用 Fitbit Flex 并在 8 周内与研究物理治疗师进行两次电话咨询)后,与自身或研究物理治疗师的关系中所经历的益处或弊端。使用关系伦理视角来识别参与者在使用可穿戴设备时与自身或研究物理治疗师关系中体验到的好处或坏处。

结果

对 21 名参与者(12 名女性,9 名男性)的访谈进行了分析,年龄在 40 至 82 岁之间。教育水平从高中毕业(21 人中有 4 人,19%)到本科或以上(21 人中有 11 人,52%)不等。我们确定了 3 个描述类别:(1)参与者根据自己在日常生活中自主选择身体活动的自由度,体验到可穿戴设备对他们的活动产生激励或唠叨的影响;(2)一些参与者从可穿戴设备数据的进展中获得成就感,从而激发他们的积极性;(3)对于一些参与者来说,分享可穿戴设备数据有助于建立他们与研究物理治疗师之间的互信。然而,他们也表示,分享可穿戴设备数据有可能破坏这种信任,特别是如果数据不准确的话。

结论

这些发现提供了一个早期的视角,让我们了解到膝骨关节炎患者在参加支持身体活动的随机对照试验时,使用可穿戴设备可能会产生的积极和消极的情绪影响。据我们所知,这是第一项使用关系伦理视角探讨关节炎患者在研究参与期间使用可穿戴设备时与健康专业人员的关系变化的定性研究。

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