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支持患有特应性皮炎儿童的父母。

Supporting the parents of children with atopic eczema.

作者信息

Lawton Sandra, Roberts Amanda, Gibb Colin

机构信息

Queen's Medical Centre, University Hospital, Clifton Boulevard, Nottingham, UK.

出版信息

Br J Nurs. 2005;14(13):693-6. doi: 10.12968/bjon.2005.14.13.18446.

DOI:10.12968/bjon.2005.14.13.18446
PMID:16116367
Abstract

Atopic eczema is a chronic skin condition affecting between 5% and 20% of children aged up to 11 years, and the numbers are increasing. While eczema is often seen to be a minor problem, research has shown that it can cause considerable disruption to the lives of children and their carers, and can incur significant cost for the family and the healthcare system. Access to good quality, relevant information on the seriousness of atopic eczema, problems that are likely to occur during the illness, and how these may affect the child and his/her family's everyday life is an important consideration when providing care. This article focuses on the information needs and the role that support groups can have in relation to caring for children and their families living with atopic eczema.

摘要

特应性湿疹是一种慢性皮肤病,影响着5%至20%的11岁以下儿童,且发病率呈上升趋势。虽然湿疹通常被视为小问题,但研究表明,它会给儿童及其照顾者的生活带来相当大的困扰,还会给家庭和医疗系统带来巨大成本。在提供护理时,获取有关特应性湿疹严重性、疾病期间可能出现的问题以及这些问题如何影响孩子及其家庭日常生活的高质量相关信息是一个重要考量因素。本文重点关注信息需求以及支持小组在照顾患有特应性湿疹的儿童及其家庭方面所能发挥的作用。

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1
Supporting the parents of children with atopic eczema.支持患有特应性皮炎儿童的父母。
Br J Nurs. 2005;14(13):693-6. doi: 10.12968/bjon.2005.14.13.18446.
2
[Counseling of parents with children with atopic dermatitis].[为患有特应性皮炎儿童的家长提供咨询]
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引用本文的文献

1
Liberating parents from guilt: a grounded theory study of parents' internet communities for the recognition of ADHD.解放父母的内疚感:关于父母认可 ADHD 的互联网社区的扎根理论研究。
Int J Qual Stud Health Well-being. 2019 Dec;14(1):1564520. doi: 10.1080/17482631.2018.1564520.
2
Psychological and educational interventions for atopic eczema in children.儿童特应性皮炎的心理和教育干预措施。
Cochrane Database Syst Rev. 2014 Jan 7;2014(1):CD004054. doi: 10.1002/14651858.CD004054.pub3.
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Parenthood, information and support on the internet. A literature review of research on parents and professionals online.
为人父母、互联网上的信息与支持。关于父母及专业人士在线研究的文献综述
BMC Fam Pract. 2009 May 18;10:34. doi: 10.1186/1471-2296-10-34.
4
Educational programmes for young people with eczema.针对患有湿疹的年轻人的教育项目。
BMJ. 2006 Apr 22;332(7547):923-4. doi: 10.1136/bmj.332.7547.923.