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患者如何体验银屑病:一项欧洲调查的结果。

How patients experience psoriasis: results from a European survey.

作者信息

Fouéré S, Adjadj L, Pawin H

机构信息

Department de Dermatologie and Vénérologie, Hôpital St Louis, Paris, France.

出版信息

J Eur Acad Dermatol Venereol. 2005 Nov;19 Suppl 3:2-6. doi: 10.1111/j.1468-3083.2005.01329.x.

Abstract

BACKGROUND

Most of the psoriasis that affects the European population is treated with topical preparations. Compliance rates, however, are known to be quite low.

OBJECTIVE

To provide an update on how psoriasis is experienced by patients and how well these patients comply with prescribed topical treatment.

METHODS

This was an observational and transversal survey conducted in 1281 patients with psoriasis. Patient input alone formed the basis of the study. Participants were contacted through the national psoriasis patient associations in France, the United Kingdom, Belgium, Germany and the Netherlands.

RESULTS

The study showed that 32% of the patients suffer currently from psoriasis in the face, skin folds and genital areas--areas very sensitive to topical treatments. Most of the patients (74%) considered their psoriasis as at least moderately severe, and 73% stated not to comply with their current treatment. Lack of efficacy and messiness of the treatment were the main reasons for non-compliance, an element that is especially important for the use in sensitive areas such as the face, skin folds and genitalia.

CONCLUSION

The present survey confirmed that cosmetic acceptability is, together with efficacy and safety, a very important aspect of a successful treatment of psoriasis.

摘要

背景

大多数影响欧洲人群的银屑病采用局部用药治疗。然而,已知依从率相当低。

目的

提供关于患者如何看待银屑病以及这些患者对规定的局部治疗的依从程度的最新情况。

方法

这是一项对1281例银屑病患者进行的观察性横断面调查。仅患者的反馈构成了该研究的基础。通过法国、英国、比利时、德国和荷兰的全国银屑病患者协会联系参与者。

结果

研究表明,32%的患者目前面部、皮肤褶皱和生殖器部位患有银屑病,这些部位对局部治疗非常敏感。大多数患者(74%)认为其银屑病至少为中度严重,73%的患者表示未遵守当前治疗。治疗缺乏疗效和不便使用是不依从的主要原因,这一因素对于在面部、皮肤褶皱和生殖器等敏感部位使用治疗尤为重要。

结论

本次调查证实,美观可接受性与疗效和安全性一样,是成功治疗银屑病的一个非常重要的方面。

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