Henriksson C, Gundmark I, Bengtsson A, Ek A C
Department of Caring Sciences, Faculty of Health Sciences, University Hospital, Linköping, Sweden.
Clin J Pain. 1992 Jun;8(2):138-44. doi: 10.1097/00002508-199206000-00012.
The influence of chronic pain on daily life was studied in 58 patients (55 women and three men) with fibromyalgia. The mean age was 45 +/- 11 (SD) years. A mail questionnaire including a 2-day diary was used for data collection. Information was gathered on social background, employment status, symptoms, physical training habits, patients' experience of general health, physical condition, and difficulties in performing motor tasks. The patient reported every half hour in the activity diary the degree of pain and fatigue, whether the activities were difficult to perform, and whether the patient considered them to be enjoyable, valuable, and meaningful. Fifty-five percent of the group had gainful employment. Most were working shorter hours and with changed work tasks. Motor tasks, such as carrying, holding, and running were more difficult to perform than before the onset of the symptoms, and half of the group reported most of their activities as strenuous to perform. Thirty-nine persons (67%) reported no, or very short, pain-free periods during the 2 days. In conclusion, symptoms influenced daily life considerably, and almost all patients reported changes in habits and routines as a consequence of fibromyalgia. An assessment of the patient's total life situation gives valuable information for understanding the patients' ability to handle everyday life.
对58例纤维肌痛患者（55名女性和3名男性）进行了慢性疼痛对日常生活影响的研究。平均年龄为45±11（标准差）岁。采用包括2天日记的邮寄问卷进行数据收集。收集了社会背景、就业状况、症状、体育锻炼习惯、患者对总体健康、身体状况的体验以及执行运动任务的困难等方面的信息。患者在活动日记中每半小时报告一次疼痛和疲劳程度、活动是否难以执行以及患者是否认为这些活动有趣、有价值和有意义。该组55%的人有有酬工作。大多数人工作时间缩短且工作任务有所改变。诸如搬运、握持和跑步等运动任务比症状出现前更难执行，并且该组一半的人报告他们的大多数活动执行起来很费力。39人（67%）报告在这2天中没有或只有很短的无痛期。总之，症状对日常生活有相当大的影响，几乎所有患者都报告由于纤维肌痛导致习惯和日常活动发生了变化。对患者总体生活状况的评估为了解患者处理日常生活的能力提供了有价值的信息。
