Henriksson C M
Department of Caring Sciences, Faculty of Health Sciences, University Hospital, Linköping, Sweden.
Scand J Rheumatol. 1994;23(1):36-41. doi: 10.3109/03009749409102133.
Fifty-six patients with fibromyalgia, previously studied in 1984, were followed up after five years, using a mail questionnaire and a global health assessment instrument, the Sickness Impact Profile. The aim was to investigate the patients' perception of their symptoms and to describe the consequences for everyday life. Half of the patients reported that pain, fatigue and sleep problems had increased, less than 20% reported improvements, and 30-40%, no change. In spite of this, 25% reported that their overall condition had improved. Motor tasks were somewhat less difficult to manage. The symptoms had severe consequences for the patients' ability to manage everyday life activities. The study confirms that fibromyalgia, once established, is a non-remitting syndrome. Also, the social consequences were constant over time.
1984年曾对56名纤维肌痛患者进行过研究，五年后对他们进行了随访，采用邮寄问卷以及一种整体健康评估工具——疾病影响概况量表。目的是调查患者对自身症状的感知，并描述这些症状对日常生活的影响。半数患者报告疼痛、疲劳和睡眠问题有所加重，不到20%的患者报告症状有所改善，30% - 40%的患者表示无变化。尽管如此，仍有25%的患者报告其总体状况有所改善。执行运动任务的难度稍有降低。这些症状对患者管理日常生活活动的能力产生了严重影响。该研究证实，纤维肌痛一旦形成，就是一种持续性的综合征。此外，随着时间推移，其社会影响也持续存在。
