Henriksson C, Burckhardt C
Department of Caring Sciences, Faculty of Health Sciences, University Hospital, Linköping, Sweden.
Disabil Rehabil. 1996 May;18(5):241-8. doi: 10.3109/09638289609166308.
The study investigated how 39 women with fibromyalgia (FM), living in two countries (USA or Sweden), report the consequences of fibromyalgia on everyday life activities. Data were collected using questionnaires, diaries and interviews. The result showed that the impact on everyday life was considerable. The majority of the women experienced pain and fatigue for more than 90% of their time awake. There were no significant differences between the national groups in time use, problems with everyday activities, or quality of life. Overall, the differences between individuals were greater than between the national groups. The majority of the employed patients in the Swedish group had reduced their working time, while the employed patients in the USA group worked mainly full-time. Patients who were able to reduce their working hours to fit their perceived capacity were less exhausted during their leisure, and reported higher satisfaction with daily activities.
该研究调查了生活在两个国家（美国或瑞典）的39名纤维肌痛（FM）女性如何报告纤维肌痛对日常生活活动的影响。数据通过问卷调查、日记和访谈收集。结果表明，对日常生活的影响相当大。大多数女性在醒着的时间里超过90%都经历疼痛和疲劳。两国组在时间利用、日常活动问题或生活质量方面没有显著差异。总体而言，个体之间的差异大于两国组之间的差异。瑞典组中大多数就业患者减少了工作时间，而美国组的就业患者主要全职工作。能够减少工作时间以适应自身感知能力的患者在休闲时精力耗尽程度较低，并且对日常活动的满意度较高。
