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功能性腹痛患儿的生活质量:患者与家长认知的比较研究

Quality of life for children with functional abdominal pain: a comparison study of patients' and parents' perceptions.

作者信息

Youssef Nader N, Murphy Thomas G, Langseder Annette L, Rosh Joel R

机构信息

Center for Pediatric Functional Gastrointestinal and Motility Disorders, Goryeb Children's Hospital/Atlantic Health System, Morristown, NJ 07962, USA.

出版信息

Pediatrics. 2006 Jan;117(1):54-9. doi: 10.1542/peds.2005-0114.

Abstract

OBJECTIVE

Children with chronic abdominal pain of nonorganic origin, termed functional abdominal pain (FAP), experience school absences and social withdrawal and report impaired physical ability. The aim of this study was to assess patients' and parents' perceptions of health-related quality of life (QoL) for children with FAP.

METHODS

Between October 2002 and November 2003, 209 children (including 125 girls; age: 11.2 +/- 3.5 years) and 209 parents were recruited from a pediatric referral center. At the time of their initial evaluations, participants completed a validated, health-related QoL instrument (Pediatric Quality of Life Inventory), which was scored on a scale of 0 (poor) through 100 (best). Children with FAP (n = 65) and their families were compared with control groups of healthy children (n = 46) and children with histologically proven inflammatory bowel disease (IBD) (n = 42) or gastroesophageal reflux disease (GERD) (n = 56).

RESULTS

Children with FAP had self-reported QoL scores (score: 78) that were similar to those for children with GERD (score: 80) or IBD (score: 84). Children with FAP had lower QoL scores than did healthy children (score: 88). Parents of children with FAP reported lower QoL scores, compared with their children's scores (scores: 70 vs 78).

CONCLUSIONS

Children with FAP reported lower QoL, compared with their healthy peers, and had the same QoL scores as did children with IBD or GERD. Parents' perceptions of QoL for children with FAP were lower than their children's self-reported scores. These findings highlight the clinical significance of FAP and may provide insight into one facet of the disease's biopsychosocial etiology.

摘要

目的

患有非器质性慢性腹痛的儿童,即功能性腹痛(FAP),会出现缺课和社交退缩的情况,并报告身体能力受损。本研究的目的是评估FAP患儿及其家长对健康相关生活质量(QoL)的认知。

方法

在2002年10月至2003年11月期间,从一家儿科转诊中心招募了209名儿童(包括125名女孩;年龄:11.2±3.5岁)和209名家长。在他们初次评估时,参与者完成了一份经过验证的、与健康相关的生活质量量表(儿童生活质量量表),评分范围为0(差)至100(最佳)。将FAP患儿(n = 65)及其家庭与健康儿童对照组(n = 46)、经组织学证实的炎症性肠病(IBD)患儿(n = 42)或胃食管反流病(GERD)患儿(n = 56)进行比较。

结果

FAP患儿自我报告的生活质量得分(得分:78)与GERD患儿(得分:80)或IBD患儿(得分:84)相似。FAP患儿的生活质量得分低于健康儿童(得分:88)。FAP患儿的家长报告的生活质量得分低于其孩子的得分(得分:70对78)。

结论

与健康同龄人相比,FAP患儿报告的生活质量较低,且与IBD或GERD患儿的生活质量得分相同。家长对FAP患儿生活质量的认知低于其孩子自我报告的得分。这些发现突出了FAP的临床意义,并可能为该疾病的生物心理社会病因的一个方面提供见解。

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