Magliano L, Fiorillo A, Rosa C, Maj M
Department of Psychiatry, University of Naples, Largo Madonna delle Grazie, I-80138 Naples, Italy.
Acta Psychiatr Scand Suppl. 2006(429):60-3. doi: 10.1111/j.1600-0447.2005.00719.x.
To compare burden and social network in families of patients with schizophrenia or physical diseases.
A total of 709 relatives of patients with schizophrenia and 646 relatives of patients with physical diseases were recruited in 169 specialized units located in 30 randomly selected Italian geographical areas.
In both groups, the consequences of caregiving most frequently reported as present were constraints in social activities, negative effects on family life and a feeling of loss. Objective burden was similar in the two groups, while subjective burden was higher in schizophrenia. Social support was lower among relatives of patients with schizophrenia than among those of the other group.
These results highlight the need to provide families of those with long-term diseases with supportive interventions, aiming to: i) manage relatives' psychological reactions to patient's illness; ii) provide information on patient's disease; iii) reinforce relatives' social network, especially in the case of schizophrenia.
比较精神分裂症患者家庭与躯体疾病患者家庭的负担及社会网络情况。
在意大利30个随机选取的地理区域的169个专科单位招募了709名精神分裂症患者亲属和646名躯体疾病患者亲属。
两组中，最常报告出现的照料后果是社交活动受限、对家庭生活的负面影响以及失落感。两组的客观负担相似，而精神分裂症组的主观负担更高。精神分裂症患者亲属的社会支持低于另一组患者的亲属。
这些结果凸显了有必要为患有长期疾病者的家庭提供支持性干预措施，旨在：i）管理亲属对患者疾病的心理反应；ii）提供有关患者疾病的信息；iii）加强亲属的社会网络，尤其是在精神分裂症患者的情况下。
