Tsiouri Ioanna G, Gena Angeliki
School of Philosophy, Department of Educational Studies, National and Kapodistrian University of Athens, 10679 Athens, Greece.
Psychiatric Clinic, University Hospital of Larissa, 41334 Larissa, Greece.
J Clin Med. 2025 Mar 28;14(7):2307. doi: 10.3390/jcm14072307.
A relatively small number of studies have evaluated the effectiveness of interventions designed to ameliorate family burden and to improve family functioning for families with a child with ASD. This study aims to investigate whether a long-term multi-family group psychoeducational intervention, originally developed for families including a member with a psychiatric disorder, can assist the parents of children with ASD to improve family functioning, support family rituals, and ease family burden; to understand the etiology, the characteristics, and treatment options for ASD; and to manage social and self-stigmatization. : We compared an intervention group (N = 3 couples-6 parents) with a waitlist control group (N = 3 couples-6 parents) by administering psychometric scales to evaluate the effectiveness of the intervention on (a) family functioning, (b) family rituals, and (c) family burden. Qualitative analysis of pre- and post-intervention semi-structured interviews assessed (a) the participants' understanding of the nature, causes, and treatments for ASD and (b) the management of social and self-stigmatization in families with a child with ASD. Quantitative pre- and post-test group comparisons, as well as qualitative thematic analysis, revealed significant decreases in all parameters under study for the treatment group. Our findings provide pilot evidence that long-term group psychoeducation, originally designed for families including a member with a psychiatric disorder, may provide an efficacious treatment choice toward improving the general functioning of families with a child with ASD. Systematic replications of this psychoeducational intervention merit attention.
相对较少的研究评估了旨在减轻家庭负担并改善患有自闭症谱系障碍（ASD）儿童家庭功能的干预措施的有效性。本研究旨在调查一种最初为包括患有精神疾病成员的家庭开发的长期多家庭团体心理教育干预措施，是否能够帮助ASD儿童的父母改善家庭功能、支持家庭仪式并减轻家庭负担；了解ASD的病因、特征和治疗选择；以及应对社会和自我污名化。我们通过使用心理测量量表比较了干预组（N = 3对夫妻 - 6位父母）和候补对照组（N = 3对夫妻 - 6位父母），以评估干预措施在以下方面的有效性：（a）家庭功能，（b）家庭仪式，以及（c）家庭负担。对干预前后半结构化访谈的定性分析评估了：（a）参与者对ASD的性质、病因和治疗方法的理解，以及（b）患有ASD儿童家庭中社会和自我污名化的应对情况。定量的前后测试组比较以及定性的主题分析表明，治疗组所研究的所有参数均有显著下降。我们的研究结果提供了初步证据，表明最初为包括患有精神疾病成员的家庭设计的长期团体心理教育，可能为改善患有ASD儿童家庭的总体功能提供一种有效的治疗选择。这种心理教育干预措施的系统复制值得关注。
