Zarkadas M, Cranney A, Case S, Molloy M, Switzer C, Graham I D, Butzner J D, Rashid M, Warren R E, Burrows V
Canadian Celiac Association, University of Ottawa, Ottawa, ON, Canada.
J Hum Nutr Diet. 2006 Feb;19(1):41-9. doi: 10.1111/j.1365-277X.2006.00659.x.
OBJECTIVE We sought to evaluate the impact of the gluten-free diet on the 5,240 members of the Canadian Celiac Association (CCA). Data are presented on 2,681 adults (>or=16 years) with biopsy-proven celiac disease (CD).
A mail-out survey was used. Quality of life was evaluated using the 'SF12', and celiac-specific questions.
Mean age was 56 years, mean age at diagnosis was 45 years, and 75% were female. The 'SF12' summary scores were similar to normative Canadian data, but were significantly lower for females and newly diagnosed patients. Respondents reported: following a gluten-free (GF) diet (90%), improvement on the diet (83%), and difficulties following the diet (44%), which included: determining if foods were GF (85%), finding GF foods in stores (83%), avoiding restaurants (79%), and avoiding travel (38%). Most common reactions to consumed gluten (among 73%) included pain, diarrhea, bloating, fatigue, nausea, and headache. Excellent information on CD and its treatment was provided by the CCA (64%), gastroenterologists (28%), dietitians (26%) and family doctor (12%).
Quality of life in those with CD could be increased with early diagnosis, increased availability of gluten-free foods, improved food labelling, and better dietary instruction. Education of physicians and dietitians about CD and its treatment is essential.
目的 我们试图评估无麸质饮食对加拿大乳糜泻协会（CCA）5240名成员的影响。本文呈现了2681名经活检证实患有乳糜泻（CD）的成年人（≥16岁）的数据。
采用邮寄调查。使用“SF12”和乳糜泻特异性问题评估生活质量。
平均年龄为56岁，平均诊断年龄为45岁，75%为女性。“SF12”总结得分与加拿大标准数据相似，但女性和新诊断患者得分显著较低。受访者报告：遵循无麸质（GF）饮食（90%），饮食后有改善（83%），以及遵循饮食有困难（44%），其中包括：确定食物是否为无麸质（85%），在商店找到无麸质食物（83%），避免去餐馆（79%），以及避免旅行（38%）。对摄入麸质的最常见反应（73%中）包括疼痛腹泻、腹胀、疲劳、恶心和头痛。加拿大乳糜泻协会（64%）、胃肠病学家（28%）、营养师（26%）和家庭医生（12%）提供了关于乳糜泻及其治疗的优秀信息。
早期诊断、增加无麸质食物的可获得性、改善食品标签和更好的饮食指导可提高乳糜泻患者的生活质量。对医生和营养师进行乳糜泻及其治疗的教育至关重要。
