Schmitz Tim G, Goldbeck Lutz
Department of Pediatrics, Schwabing, Technical University Munich, Köner Platz 1, 80804 München, Germany.
Health Qual Life Outcomes. 2006 Feb 3;4:8. doi: 10.1186/1477-7525-4-8.
Disease-specific, multimodal inpatient rehabilitation programmes are designed to improve the physical, emotional, and social functioning of patients with cystic fibrosis (CF). This study investigates the effects of a 4-week inpatient rehabilitation program on health-related quality of life (QL).
84 German patients with CF (16-62 years of age, FEV1 mean 52.9% of the predicted), participating in an inpatient rehabilitation programme, completed the Questions on Life Satisfaction-Modules (FLZM) at the beginning and one month after the end of intervention. The FLZM allows the multi-dimensional evaluation of subjectively perceived satisfaction with general and health-specific life domains. In addition, medical parameters (FEV1, Body Mass Index) and socio-demographic data were registered.
Compared to the baseline scores, after rehabilitation, participants were significantly more satisfied with general, health-related, and CF-related aspects of their lives. Specifically, improvement was noted in the following items: breathing difficulties/cough, sleep, integration of therapy into daily routine, leisure activities, general health perception, physical condition and being free from anxiety.
Comprehensive inpatient rehabilitation programmes are a promising strategy to improve the quality of life of adolescent and adult CF-patients.
针对特定疾病的多模式住院康复计划旨在改善囊性纤维化（CF）患者的身体、情感和社会功能。本研究调查了为期4周的住院康复计划对健康相关生活质量（QL）的影响。
84名德国CF患者（年龄16 - 62岁，FEV1平均为预测值的52.9%）参与了一项住院康复计划，在干预开始时和结束后1个月完成了生活满意度模块问卷（FLZM）。FLZM允许对总体和健康特定生活领域的主观感知满意度进行多维度评估。此外，还记录了医学参数（FEV1、体重指数）和社会人口学数据。
与基线分数相比，康复后参与者对其生活的总体、健康相关和CF相关方面的满意度显著提高。具体而言，在以下项目中观察到改善：呼吸困难/咳嗽、睡眠、将治疗融入日常生活、休闲活动、总体健康感知、身体状况和无焦虑状态。
全面的住院康复计划是改善青少年和成年CF患者生活质量的一项有前景的策略。
