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住院康复计划对囊性纤维化患者生活质量的影响:一项多中心研究。

The effect of inpatient rehabilitation programmes on quality of life in patients with cystic fibrosis: a multi-center study.

作者信息

Schmitz Tim G, Goldbeck Lutz

机构信息

Department of Pediatrics, Schwabing, Technical University Munich, Köner Platz 1, 80804 München, Germany.

出版信息

Health Qual Life Outcomes. 2006 Feb 3;4:8. doi: 10.1186/1477-7525-4-8.

Abstract

BACKGROUND

Disease-specific, multimodal inpatient rehabilitation programmes are designed to improve the physical, emotional, and social functioning of patients with cystic fibrosis (CF). This study investigates the effects of a 4-week inpatient rehabilitation program on health-related quality of life (QL).

METHODS

84 German patients with CF (16-62 years of age, FEV1 mean 52.9% of the predicted), participating in an inpatient rehabilitation programme, completed the Questions on Life Satisfaction-Modules (FLZM) at the beginning and one month after the end of intervention. The FLZM allows the multi-dimensional evaluation of subjectively perceived satisfaction with general and health-specific life domains. In addition, medical parameters (FEV1, Body Mass Index) and socio-demographic data were registered.

RESULTS

Compared to the baseline scores, after rehabilitation, participants were significantly more satisfied with general, health-related, and CF-related aspects of their lives. Specifically, improvement was noted in the following items: breathing difficulties/cough, sleep, integration of therapy into daily routine, leisure activities, general health perception, physical condition and being free from anxiety.

CONCLUSION

Comprehensive inpatient rehabilitation programmes are a promising strategy to improve the quality of life of adolescent and adult CF-patients.

摘要

背景

针对特定疾病的多模式住院康复计划旨在改善囊性纤维化(CF)患者的身体、情感和社会功能。本研究调查了为期4周的住院康复计划对健康相关生活质量(QL)的影响。

方法

84名德国CF患者(年龄16 - 62岁,FEV1平均为预测值的52.9%)参与了一项住院康复计划,在干预开始时和结束后1个月完成了生活满意度模块问卷(FLZM)。FLZM允许对总体和健康特定生活领域的主观感知满意度进行多维度评估。此外,还记录了医学参数(FEV1、体重指数)和社会人口学数据。

结果

与基线分数相比,康复后参与者对其生活的总体、健康相关和CF相关方面的满意度显著提高。具体而言,在以下项目中观察到改善:呼吸困难/咳嗽、睡眠、将治疗融入日常生活、休闲活动、总体健康感知、身体状况和无焦虑状态。

结论

全面的住院康复计划是改善青少年和成年CF患者生活质量的一项有前景的策略。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/866b/1373610/f546325353d6/1477-7525-4-8-1.jpg

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