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探索多动症患者日常生活挑战的映射:基于母婴视角的电子日记研究

Toward mapping daily challenges of living with ADHD: maternal and child perspectives using electronic diaries.

作者信息

Whalen Carol K, Henker Barbara, Jamner Larry D, Ishikawa Sharon S, Floro Joshua N, Swindle Ralph, Perwien Amy R, Johnston Joseph A

机构信息

Department of Psychology and Social Behavior, University of California, Irvine, 92697, USA.

出版信息

J Abnorm Child Psychol. 2006 Feb;34(1):115-30. doi: 10.1007/s10802-005-9008-5. Epub 2006 Feb 4.

DOI:10.1007/s10802-005-9008-5
PMID:16463071
Abstract

Attention-deficit/hyperactivity disorder (ADHD) has an impact on the family as well as the affected child. This study developed and tested an electronic diary for mapping the challenges of everyday family life in a sample of children with ADHD being treated with pharmacotherapy. Across 7 days, mothers and children (27 ADHD; 25 non-ADHD) independently reported their moods, behaviors, and social contexts every 30 min during nonschool hours. Symptomatic behaviors and negative moods were elevated in the ADHD group, combined with maternal perceptions of lower parenting effectiveness and quality of life. Differences in the contexts of maternal anger were salient, with mothers in the ADHD group more often angry when with their children and comparison mothers more often angry when not. Although mothers' diaries were more informative, children's diaries also distinguished the two groups, especially during mornings and weekends. The need for family-wide interventions, the utility of child self-reports, and the promise of electronic diaries are discussed.

摘要

注意力缺陷多动障碍(ADHD)不仅会影响患病儿童,还会对其家庭产生影响。本研究开发并测试了一种电子日记,用于记录接受药物治疗的多动症儿童样本在日常生活中家庭面临的挑战。在7天的时间里,母亲和孩子(27名多动症儿童;25名非多动症儿童)在非上学时间每隔30分钟独立报告他们的情绪、行为和社交环境。多动症组的症状行为和负面情绪有所增加,同时母亲认为自己的育儿效果和生活质量较低。母亲愤怒情境的差异很显著,多动症组的母亲与孩子在一起时更常生气,而对照组的母亲在不与孩子在一起时更常生气。尽管母亲的日记提供的信息更多,但孩子的日记也能区分这两组,尤其是在早晨和周末。本文还讨论了全家庭干预的必要性、儿童自我报告的效用以及电子日记的前景。

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本文引用的文献

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Assessing ADHD-related family stressors with the Disruptive Behavior Stress Inventory (DBSI): a replication and extension.使用破坏性行为压力量表(DBSI)评估与注意力缺陷多动障碍相关的家庭压力源:一项复制与扩展研究
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How informative are parent reports of attention-deficit/hyperactivity disorder symptoms for assessing outcome in clinical trials of long-acting treatments? A pooled analysis of parents' and teachers' reports.
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Effect of Delayed-Release and Extended-Release Methylphenidate on Caregiver Strain and Validation of Psychometric Properties of the Caregiver Strain Questionnaire: Results from a Phase 3 Trial in Children with Attention-Deficit/Hyperactivity Disorder.延迟释放和延长释放哌甲酯对照顾者负担的影响及照顾者负担问卷心理测量学特性的验证:来自儿童注意缺陷多动障碍 3 期试验的结果。
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Activities of daily living and working memory in pediatric attention-deficit/hyperactivity disorder (ADHD).日常生活活动和工作记忆在儿科注意缺陷多动障碍(ADHD)中的作用。
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