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[患者视角下的癌症化疗经历]

[The cancer chemotherapy experience in a patient's view].

作者信息

Anjos Anna Cláudia Yokoyama dos, Zago Márcia Maria Fontão

机构信息

Escola de Enfermagem de Ribeirão Preto, Universidade de São Paulo.

出版信息

Rev Lat Am Enfermagem. 2006 Jan-Feb;14(1):33-40. doi: 10.1590/s0104-11692006000100005. Epub 2006 Mar 8.

DOI:10.1590/s0104-11692006000100005
PMID:16532237
Abstract

This study aimed to understand the meaning of chemotherapy from the patient's point of view, based on the postulates of interpretative anthropology and ethnographic case study. A breast cancer patient was selected on the basis of predetermined criteria, the most important of which was that the patient should be initiating the chemotherapy treatment in order to be followed. Data were collected by means of semi-structured interviews, observations and a field diary. Data analysis involved two phases: first, we identified the units of meaning; then, we organized the meaning attributed to the cancer chemotherapy experience in the patients' point of view, which was the "loss of life control". This meaning stressed the changes in the patient's social role, especially the difficulties to provide financial support to the family and the relationship with her children. This study highlights the importance of nursing care throughout the whole chemotherapy treatment, as well as the importance of nurses recognizing sociocultural influences and including them in the care plan.

摘要

本研究旨在基于解释性人类学的假设和民族志案例研究,从患者的角度理解化疗的意义。根据预先确定的标准选择了一名乳腺癌患者,其中最重要的标准是该患者应开始化疗治疗以便进行跟踪。通过半结构化访谈、观察和实地日记收集数据。数据分析包括两个阶段:首先,我们确定意义单元;然后,我们从患者的角度组织赋予癌症化疗经历的意义,即“失去生活控制权”。这一意义强调了患者社会角色的变化,特别是为家庭提供经济支持的困难以及与子女的关系。本研究强调了在整个化疗治疗过程中护理的重要性,以及护士认识到社会文化影响并将其纳入护理计划的重要性。

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[The cancer chemotherapy experience in a patient's view].[患者视角下的癌症化疗经历]
Rev Lat Am Enfermagem. 2006 Jan-Feb;14(1):33-40. doi: 10.1590/s0104-11692006000100005. Epub 2006 Mar 8.
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What are they talking about? Content of the communication exchanges between nurses, patients and relatives in a department of medicine for older people-An ethnographic study.他们在谈论什么?老年医学病房护士、患者和家属之间沟通交流的内容——一项民族志研究。
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Evaluation of the feasibility and acceptability of an oral care diary by patients during chemotherapy.评估化疗期间患者使用口腔护理日记的可行性和可接受性。
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A nursing intervention aimed at reducing symptom burden during chemotherapy (CHEMO-SUPPORT): A mixed-methods study of the patient experience.一项旨在减轻化疗期间症状负担的护理干预措施(CHEMO-SUPPORT):关于患者体验的混合方法研究
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Informational and emotional support received by relatives before and after the cancer patient's death.癌症患者去世前后亲属所获得的信息支持和情感支持。
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Rev Lat Am Enfermagem. 2015 May-Jun;23(3):427-34. doi: 10.1590/0104-1169.0455.2572. Epub 2015 Jul 3.