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多发性硬化症患者的担忧与关切:一种评估量表的研制

Worries and concerns of patients with multiple sclerosis: development of an assessment scale.

作者信息

Thornton E W, Tedman S, Rigby S, Bashforth H, Young C

机构信息

School of Psychology, University of Liverpool, UK.

出版信息

Mult Scler. 2006 Apr;12(2):196-203. doi: 10.1191/135248506ms1273oa.

DOI:10.1191/135248506ms1273oa
PMID:16629423
Abstract

This study examined the nature of worry in adult patients with multiple sclerosis (MS) in the UK. A measure of worry in MS was developed and the relationship between worry and standard scale measures of anxiety and depression was examined. Thirty-nine patients with MS and 40 controls completed the new worry scale (WQMS) that was psychometrically evaluated, together with the Penn State Worry Questionnaire (PSWQ), the Hospital Anxiety and Depression Scale (HAD) and a previously developed scale to assess self-efficacy in MS (SESMS). The scores for both anxiety (t = 2.34; P < 0.05) and depression (t = 5.52; P <0.01) were higher in MS patients than controls, as was the new scale for worry--the WQMS. A factor analysis (explaining 65.73% of the variance) suggests that the worries of patients may be dichotomized into those concerned with the physical effects of the disease and those relating to the impact on social interaction, family relationships and daily activity in the home and/or work. Worry in patients with MS was associated with a decreased sense of being able to produce positive activities or effect positive outcomes (low self-efficacy). The questionnaire provides a framework for investigation in clinic of specific concerns and level of worry they engender.

摘要

本研究调查了英国成年多发性硬化症(MS)患者的担忧本质。我们编制了一份MS患者担忧程度的测量量表,并研究了担忧与焦虑和抑郁标准量表测量值之间的关系。39名MS患者和40名对照者完成了新的担忧量表(WQMS),该量表经过了心理测量学评估,同时还完成了宾夕法尼亚州立大学担忧问卷(PSWQ)、医院焦虑抑郁量表(HAD)以及之前编制的用于评估MS患者自我效能感的量表(SESMS)。MS患者的焦虑得分(t = 2.34;P < 0.05)和抑郁得分(t = 5.52;P <0.01)均高于对照者,新的担忧量表——WQMS也是如此。一项因子分析(解释了65.73%的方差)表明,患者的担忧可分为两类,一类与疾病的身体影响有关,另一类与对社交互动、家庭关系以及家庭和/或工作中的日常活动的影响有关。MS患者的担忧与产生积极活动或取得积极结果的能力下降(自我效能感低)有关。该问卷为在临床中调查特定担忧及其引发的担忧程度提供了一个框架。

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